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设计感官套件以改善儿科急诊环境中的自闭症谱系障碍儿童

Designing a Sensory Kit to Improve the Environment for Children with Autism Spectrum Disorder in the Pediatric Emergency Department.

机构信息

Division of Emergency Medicine, Hospital for Sick Children, 555 University Avenue, Toronto, ON, M5G 1X8, Canada.

Faculty of Design, Ontario College of Art and Design University, 100 McCaul Street, Toronto, ON, M5T 1W1, Canada.

出版信息

J Autism Dev Disord. 2023 Sep;53(9):3369-3379. doi: 10.1007/s10803-022-05651-7. Epub 2022 Jul 14.

DOI:10.1007/s10803-022-05651-7
PMID:35834047
Abstract

Children with autism spectrum disorder (ASD) have more frequent use of healthcare services, including visits to the emergency department (ED). Medical care for children with ASD can be adversely affected by the highly stimulating environment of the ED. In this study, we gained insights from stakeholders with lived experience (parents of children with ASD, children with ASD, and ED healthcare providers) to create and implement a sensory equipment kit. The kit was evaluated and iteratively improved based on observations of children using the sensory equipment, satisfaction surveys from their parents, and interviews with healthcare providers in the ED. Findings from this study can be used to guide other EDs in creating their own ASD sensory kit.

摘要

自闭症谱系障碍(ASD)儿童更频繁地使用医疗保健服务,包括到急诊部(ED)就诊。ED 高度刺激的环境可能会对 ASD 儿童的医疗护理产生不利影响。在这项研究中,我们从有亲身经历的利益相关者(ASD 儿童的父母、ASD 儿童和 ED 医疗保健提供者)那里获得了见解,以创建和实施一个感官设备工具包。该工具包根据儿童使用感官设备的观察结果、其父母的满意度调查以及 ED 医疗保健提供者的访谈进行了评估和迭代改进。本研究的结果可用于指导其他 ED 创建自己的 ASD 感官工具包。

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Emergency Department Patient Experience: A Systematic Review of the Literature.急诊科患者体验:文献系统综述
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Implementing and evaluating early intervention for children with autism: Where are the gaps and what should we do?
Improving Emergency Medical Services (EMS) Care for People With Autism in the Prehospital Setting Through Sensory and Communication Aids.
通过感官和沟通辅助工具改善院前环境中针对自闭症患者的紧急医疗服务(EMS)护理。
Cureus. 2024 Nov 28;16(11):e74702. doi: 10.7759/cureus.74702. eCollection 2024 Nov.
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Challenges for neurodiverse children in acute medical hospitals and opportunities for the new National Children's Hospital to be 'neurodiversity-friendly'.患有神经发育障碍的儿童在急症医院面临的挑战以及新建国家儿童医院打造“神经发育障碍友好型”医院的机遇。
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Patients with Autism Spectrum or Intellectual Disability in the Psychiatric Emergency Department: Findings from a 10-year Retrospective Review.精神科急诊科的自闭症谱系障碍或智力残疾患者:一项10年回顾性研究的结果
J Autism Dev Disord. 2024 Dec 11. doi: 10.1007/s10803-024-06658-y.
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J Perioper Pract. 2025 Jun;35(6):258-268. doi: 10.1177/17504589241253487. Epub 2024 Aug 6.
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