短信干预对脑卒中、脊髓损伤和多发性硬化患者疲劳自我管理的影响:一项初步研究。

Text messaging intervention for fatigue self-management in people with stroke, spinal cord injury, and multiple sclerosis: A pilot study.

机构信息

Center for Rehabilitation Outcomes Research, Shirley Ryan AbilityLab, Chicago, IL, 60611, USA; Department of Physical Medicine and Rehabilitation and Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, 60611, USA.

Washington University in St. Louis, School of Medicine, Program in Occupational Therapy, St. Louis, MO, USA.

出版信息

Disabil Health J. 2024 Apr;17(2):101549. doi: 10.1016/j.dhjo.2023.101549. Epub 2023 Nov 11.

Abstract

BACKGROUND

Fatigue negatively impacts the function and quality of life of people with disabilities (PwD). Mobile health (mHealth) platforms are recognized as effective and accessible approaches to delivering health interventions and may show higher satisfaction by tailoring the information toward personalized needs for PwD.

OBJECTIVE

To evaluate the acceptability, feasibility, and participant engagement with a Short Message Service (SMS) text messaging intervention for fatigue self-management and to explore the pre- and post-score health changes in PwD.

METHODS

A total of 27 PwD (multiple sclerosis = 9, spinal cord injury = 9, or stroke = 9) experiencing fatigue in their daily lives participated in a 12-week self-management text messaging intervention. Participants completed a demographic survey and health outcome measures, including patient activation, self-efficacy for managing symptoms, fatigue, sleep, and satisfaction with participation in social roles before and after the intervention. Participants also completed a client satisfaction questionnaire after the intervention. We also tracked the program retention and SMS response rates over the 12-week intervention period.

RESULTS

Twenty-five participants completed the entire intervention (93% retention rate), and the overall SMS response rate was 84.67%, indicating high acceptability and adherence to the intervention. The mean satisfaction score was 3.18, indicating high satisfaction with the intervention. Despite finding a negligible effect on patient activation, we found a small intervention effect on self-efficacy for managing symptoms (η = 0.04) and moderate effects on fatigue (η = 0.06-0.12), sleep (η = 0.11), and satisfaction with participation in social roles (η = 0.08).

CONCLUSIONS

This study provides initial feasibility and health outcome change evidence to support an SMS text messaging intervention to manage fatigue in PwD.

摘要

背景

疲劳会对残疾人士(PwD)的功能和生活质量产生负面影响。移动健康(mHealth)平台被认为是提供健康干预措施的有效且可及的方法,并且通过针对 PwD 的个性化需求来定制信息,可能会显示出更高的满意度。

目的

评估针对残疾人士疲劳自我管理的短信息服务(SMS)文本消息干预措施的可接受性、可行性和参与者参与度,并探讨 PwD 的健康变化的前后得分。

方法

共有 27 名日常生活中经历疲劳的残疾人士(多发性硬化症=9,脊髓损伤=9,或中风=9)参与了为期 12 周的自我管理短信干预措施。参与者完成了人口统计学调查和健康结果测量,包括患者激活、管理症状的自我效能、疲劳、睡眠和对参与社会角色的满意度,在干预前后进行。参与者还在干预后完成了客户满意度问卷。我们还在 12 周的干预期间跟踪了计划保留率和 SMS 回复率。

结果

25 名参与者完成了整个干预(保留率为 93%),整体 SMS 回复率为 84.67%,表明对干预措施的可接受性和依从性很高。满意度平均得分为 3.18,表明对干预措施非常满意。尽管我们发现患者激活的效果微不足道,但我们发现管理症状的自我效能的干预效果较小(η=0.04),对疲劳(η=0.06-0.12)、睡眠(η=0.11)和对参与社会角色的满意度(η=0.08)的影响适中。

结论

这项研究提供了初步的可行性和健康结果变化证据,支持使用 SMS 文本消息干预措施来管理残疾人士的疲劳。

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索