独自应对癌症:一项定性研究,探讨在 COVID-19 期间被诊断患有乳腺癌的不同种族和族裔的女性的护理体验。
Negotiating cancer alone: A qualitative study exploring care experiences of racially and ethnically diverse women diagnosed with breast cancer during COVID-19.
机构信息
University of Texas MD Anderson Cancer Center, USA.
University of Houston, USA.
出版信息
J Health Psychol. 2024 Apr;29(5):367-381. doi: 10.1177/13591053231214517. Epub 2023 Nov 27.
COVID-19 has critically impacted cancer care services including reduced screenings, diagnoses, and surgeries; particularly among Black and Latina/x women who already suffer worse outcomes. This qualitative study explored the care experiences of a diverse sample of breast cancer survivors ( = 21; 7 Black, 4 Hispanic, 10 White) undergoing treatment during the pandemic via online semi-structured interviews. Grounded theory analysis yielded the "," that included: (1) psychological distress, negotiating the cancer trajectory in isolation; (2) provider/healthcare system diagnostic and treatment delays; (3) heightened anxiety about treatment delays causing cancer progression; (4) supportive care limitations; and (5) disparate experiences of cancer care disruptions. Black and Latina/x women described greater delays in care, financial challenges, treatment complications, and insurance limitations than White women. The study identifies cancer patients' pandemic-related psychological, healthcare system, and health equity challenges and suggests recommendations to support their increased psychological needs during oncologic care disruptions.
COVID-19 对癌症护理服务产生了重大影响,包括筛查、诊断和手术减少;尤其是在已经面临更糟糕结果的黑人和拉丁裔/西班牙裔女性中。这项定性研究通过在线半结构化访谈,探索了在大流行期间接受治疗的不同乳腺癌幸存者(= 21;7 名黑人,4 名西班牙裔,10 名白人)的护理经验。扎根理论分析产生了“,”,其中包括:(1)心理困扰,孤立地协商癌症轨迹;(2)提供者/医疗保健系统的诊断和治疗延迟;(3)对治疗延迟导致癌症进展的高度焦虑;(4)支持性护理限制;(5)癌症护理中断的不同经历。黑人女性和拉丁裔/西班牙裔女性比白人女性描述了更多的护理延迟、经济挑战、治疗并发症和保险限制。该研究确定了癌症患者与大流行相关的心理、医疗保健系统和健康公平挑战,并提出了建议,以支持他们在肿瘤护理中断期间增加的心理需求。
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