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父母与癌症共存及相关经历的定性研究:照片引发的讨论

Parenting With and Beyond Cancer: A Photo-Elicitation Study.

机构信息

North Suffolk Mental Health Association, Chelsea, MA, USA.

NeuroRestorative, Austin, TX, USA.

出版信息

OTJR (Thorofare N J). 2025 Jan;45(1):48-56. doi: 10.1177/15394492231217746. Epub 2023 Dec 30.

Abstract

The purpose of this study was to understand the occupational performance of parents with cancer and to understand if photo-elicitation would provide new insights into these experiences. In a semi-structured photo-elicitation interview, 36 participants living with and beyond cancer who had children under 18 years old shared and discussed photographs related to their parenting experiences. Transcribed interviews were analyzed using thematic analysis. Two main themes were identified. Parents shared how they (a) managed daily responsibilities and (b) maintained connection with their family. Across all types, stages and phases of the cancer continuum parents shared experiences related to maintaining child and family responsibilities and maintaining connection with their children. Photo-elicitation was an efficient and effective method to gather rich data from parents living with cancer. The results emphasize the clinical utility of using photo-elicitation to understand the occupational performance of parents throughout the cancer continuum of care.

摘要

本研究旨在了解癌症患者父母的职业表现,并了解照片引发法是否能为这些经历提供新的见解。在半结构化的照片引发访谈中,36 名患有癌症或已康复且有 18 岁以下子女的参与者分享并讨论了与他们育儿经历相关的照片。转录的访谈采用主题分析进行分析。确定了两个主要主题。父母分享了他们是如何(a)管理日常责任和(b)与家人保持联系的。在癌症连续体的所有类型、阶段和阶段中,父母都分享了与履行子女和家庭责任以及与子女保持联系相关的经验。照片引发法是一种从癌症患者父母那里收集丰富数据的有效方法。研究结果强调了使用照片引发法来了解父母在整个癌症护理连续体中的职业表现的临床应用价值。

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