School of Nursing, Anhui Medical University, No. 81 Mei Shan Road, Shu Shan District, Hefei City, Anhui Province, China.
The First Affiliated Hospital of Anhui Medical University, No, 218 Ji Xi Road, Shu Shan District, Hefei City, Anhui Province, China.
BMC Health Serv Res. 2024 Jan 2;24(1):3. doi: 10.1186/s12913-023-10437-3.
To inform the development of an eHealth application for patients with cervical cancer for monitoring supportive care needs, perceived care supply and quality of life.
A mixed-method design was used. The 19-month process involved five phases: (1) a literature review to screen the components of applications, (2) a cross-sectional needs assessment for patients with cervical cancer to define the needs and application program frame, (3) expert consultation to refine the draft, (4) software development, and (5) pilot testing and user comment collection. Patients in the intervention group received a 7-day application intervention combined with usual care. Supportive care needs, perceived care supply, quality of life and user's additional comments were collected.
The literature review results in phase 1 revealed the importance of full preparation, especially a supportive care needs assessment, before application development. Subsequent supportive care needs investigation in phase 2 revealed that the most urgent needs were informational needs and privacy protection. In phase 3, 43 expert recommendations for application improvement were refined. The new application contained the patient and the health care professional portal in phase 4. Then, on Day 7, there existed score changes of the outcome measures in both intervention and control group. Users had a positive experience with the application.
This study demonstrates the feasibility of applications targeting access to supportive care, which may be effective for improving the outcome measures but needed to be evaluated in future studies.
为开发一款针对宫颈癌患者的电子健康应用程序提供信息,以监测支持性护理需求、感知护理供应和生活质量。
采用混合方法设计。该 19 个月的过程包括五个阶段:(1)文献回顾,筛选应用程序的组成部分;(2)对宫颈癌患者进行横断面需求评估,以确定需求和应用程序框架;(3)专家咨询,以完善草案;(4)软件开发;(5)试点测试和用户意见收集。干预组患者接受为期 7 天的应用程序干预加常规护理。收集支持性护理需求、感知护理供应、生活质量和用户的其他意见。
第 1 阶段的文献回顾结果表明,在开发应用程序之前,充分准备,特别是支持性护理需求评估,非常重要。随后在第 2 阶段的支持性护理需求调查中发现,最紧迫的需求是信息需求和隐私保护。在第 3 阶段,对应用程序改进的 43 条专家建议进行了细化。第 4 阶段的新应用程序包含患者和医疗保健专业人员门户。然后,在第 7 天,干预组和对照组的结局测量指标都存在评分变化。用户对该应用程序的体验是积极的。
本研究证明了针对获得支持性护理的应用程序的可行性,该应用程序可能对改善结局测量指标有效,但需要在未来的研究中进行评估。