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基于智能手机应用的支持性护理方案对重性抑郁障碍患者家庭照料者生活质量和照护负担的影响:一项随机对照试验。

Effectiveness of a supportive care program via a smartphone application on the quality of life and care burden among family caregivers of patients with major depressive disorder: a randomized controlled trial.

机构信息

Nursing and Midwifery Care Research Center, Mashhad University of Medical Sciences, Mashhad, Iran.

Department of Nursing, School of Nursing and Midwifery, Shahroud University of Medical Sciences, Shahroud, Iran.

出版信息

BMC Public Health. 2024 Jan 2;24(1):66. doi: 10.1186/s12889-023-17594-4.

Abstract

BACKGROUND

The majority of patients with major depressive disorder require care that has generally affected caregivers' lives. Providing care could cause negative experiences as a care burden and deteriorate quality of life. However, there is a lack of evidence about caregiver training-based informatics and its impact on the caregiver's life.

METHODS

This experimental study was carried out in Mashhad, Iran. A total of 60 primary family caregivers of patients with major depressive disorder were included in the study between February and July 2021. The quadruple block randomization method was used to allocate the participants into control and intervention groups. In the intervention group, family caregivers used the application with weekly phone calls for one month. The app contains the most important points of patient care and has the possibility of communicating with the nurse. The Novak and Guest Care Burden Inventory and the short form of the World Health Organization Quality of Life Questionnaire were completed before and after the intervention. Data analysis was performed using chi-squared tests, independent sample t tests, and analysis of covariance.

RESULTS

At baseline, the mean scores of care burden and quality of life were homogeneous between the two groups. After the intervention, the mean scores of care burden and quality of life were significantly reduced and improved in the intervention group compared with the control group (p < 0.001).

CONCLUSIONS

Using the application with the ability to communicate with the caregiver, along with educational support, helps to strengthen the relationship between the family caregiver and the nurse. Despite the effectiveness of the present intervention, before including this form of implementation of support in care programs, it is necessary to evaluate its other positive aspects in future studies.

TRIAL REGISTRATION

Iranian Registry of Clinical Trials (IRCT), IRCT20210202050222N1. Registered on 05/02/2022.

摘要

背景

大多数患有重度抑郁症的患者都需要接受治疗,这通常会影响到照顾者的生活。提供照顾可能会带来负面体验,如照顾负担,并降低生活质量。然而,目前缺乏关于基于照顾者培训的信息学及其对照顾者生活影响的证据。

方法

本实验研究在伊朗马什哈德进行。共有 60 名重度抑郁症患者的初级家庭照顾者参与了 2021 年 2 月至 7 月期间的研究。采用四重块随机分组方法将参与者分为对照组和干预组。在干预组中,家庭照顾者使用该应用程序并每周接受一次电话访问,为期一个月。该应用程序包含患者护理的最重要要点,并具有与护士进行沟通的可能性。干预前后完成了 Novak 和 Guest 照顾负担量表和世界卫生组织生活质量量表简表的评估。使用卡方检验、独立样本 t 检验和协方差分析进行数据分析。

结果

在基线时,两组的照顾负担和生活质量的平均得分在两组之间是同质的。干预后,干预组的照顾负担和生活质量的平均得分明显低于对照组(p<0.001)。

结论

使用具有与照顾者沟通能力的应用程序以及教育支持有助于加强家庭照顾者与护士之间的关系。尽管本干预措施有效,但在将这种支持形式纳入护理计划之前,有必要在未来的研究中评估其其他积极方面。

试验注册

伊朗临床试验注册中心(IRCT),IRCT20210202050222N1。注册于 2022 年 5 月 2 日。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/615d/10762964/a943df95aab1/12889_2023_17594_Fig1_HTML.jpg

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