ICMR-Centre for Ageing and Mental Health, Kolkata, West Bengal, India.
Department of Radiodiagnosis, Apollo Gleneagles Hospital, Kolkata, West Bengal, India.
J Vector Borne Dis. 2023 Oct-Dec;60(4):386-392. doi: 10.4103/0972-9062.374239.
BACKGROUND & OBJECTIVES: Self-care management is one of the important components in the goal of elimination of lymphatic filariasis (LF) and Quality of Life (QoL) has become an important deliverable in the present day health care system. The objective was to assess the self-care management of the affected limb and to find out the quality of life who were suffering from lymphoedema.
This was a community-based cross-sectional epidemiological study conducted during 2019-2020 in a Gourbazar gram panchayat area of Paschim Burdwan district of West Bengal, India. QoL was assessed by Lymphatic Filariasis Specific Quality of life Questionnaire (LFSQQ).
Total 115 LF patients were identified with a mean age of 53.9 years. About 26.1% correctly knew the management of the affected area. Out of the 33 patients having cracked skin, around 39.4% used to take care of the affected skin. Overall, median quality of life score was found to be 77.84 (65.90-89.20). Age-wise, median score gradually decreased with increase in age except in the age group of 50-60 years. Males had higher score compared to females (79.54 vs. 76.13). Activity domain score was found to be lowest followed by mobility score, while social and psychological domain score was found to be good.
INTERPRETATION & CONCLUSION: Self-care practice is not known to the affected patients. Time has also come to integrate measures like rehabilitation, psychological intervention, social assistance in addition to self-care management to put up a holistic approach of the existing program.
自我护理管理是消除淋巴丝虫病（LF）目标的重要组成部分之一，生活质量（QoL）已成为当今医疗保健系统的重要交付成果。目的是评估受影响肢体的自我护理管理，并了解患有淋巴水肿的人的生活质量。
这是一项 2019-2020 年在印度西孟加拉邦帕希姆布尔丹区古尔巴扎尔乡进行的基于社区的横断面流行病学研究。使用淋巴丝虫病特定生活质量问卷（LFSQQ）评估生活质量。
共发现 115 例 LF 患者，平均年龄为 53.9 岁。约 26.1%的人正确了解了受影响区域的管理。在 33 名有皲裂皮肤的患者中，约 39.4%的人会照顾受影响的皮肤。总体而言，中位数生活质量评分为 77.84（65.90-89.20）。按年龄划分，中位数评分随年龄增长逐渐降低，但在 50-60 岁年龄组除外。男性的评分高于女性（79.54 与 76.13）。活动领域评分最低，其次是移动性评分，而社会和心理领域评分良好。
受影响的患者不知道自我护理实践。除了自我护理管理外，现在也需要将康复、心理干预、社会援助等措施纳入其中，以形成现有方案的整体方法。
