Department of Physical Therapy, School of Health Sciences, University of Iceland, Reykjavik, Iceland.
Landspitali - The National University Hospital of Iceland, Children's Medical Center, Reykjavik, Iceland.
Phys Occup Ther Pediatr. 2024;44(4):554-571. doi: 10.1080/01942638.2023.2299028. Epub 2024 Jan 4.
A cross-sectional case-control survey. A total of 28 children with JIA and 36 age-matched children participated. The survey included questions on the child's sex and age, about pain experienced, number of painful body areas, pain frequency and three short forms of Patient-Reported Outcome Measurement Information System (PROMIS) pain questionnaires. Sixteen children with JIA (57%) and 10 peers (28%) reported pain during past seven days. Their responses were used in the description of impact of pain.
After the mapping of the questions to ICF, a comparison between the two groups indicated that a higher number of children with JIA described effects of pain on mental function, mobility, general tasks and demands, than their peers. More children with JIA expressed to others that they had pain, non-verbally and verbally.
The findings provide important information about the impacts of pain on daily life in children with JIA and about their intervention needs.
1）将疼痛相关问题从调查映射到国际功能、残疾和健康分类（ICF）2）比较幼年特发性关节炎（JIA）患儿和年龄匹配的健康儿童基于 ICF 不同成分的肌肉骨骼疼痛对功能的影响。
一项横断面病例对照调查。共纳入 28 名 JIA 患儿和 36 名年龄匹配的健康儿童。该调查包括儿童的性别和年龄、疼痛经历、疼痛部位数量、疼痛频率和三个简短的患者报告结局测量信息系统（PROMIS）疼痛问卷。16 名 JIA 患儿（57%）和 10 名健康儿童（28%）报告过去七天有疼痛。他们的回答用于描述疼痛的影响。
问题映射到 ICF 后，两组之间的比较表明，与健康儿童相比，更多的 JIA 患儿描述了疼痛对心理功能、移动性、一般任务和需求的影响。更多的 JIA 患儿通过非言语和言语向他人表达他们有疼痛。
这些发现提供了关于 JIA 患儿疼痛对日常生活影响以及他们的干预需求的重要信息。
