Finnish Institute for Health and Welfare, P.O. Box 30, FI-00271 Helsinki, Finland; University of Eastern Finland, P.O. Box 1627, FI-70211 Kuopio, Finland.
Finnish Institute for Health and Welfare, P.O. Box 30, FI-00271 Helsinki, Finland.
Int J Med Inform. 2024 Mar;183:105336. doi: 10.1016/j.ijmedinf.2023.105336. Epub 2024 Jan 5.
INTRODUCTION: Seeking and receiving care requires disclosure of personal information which is recorded as health data in electronic health records. Thereafter, restricting the flow of information is dependent on data protection, information security, ethical conduct, and law. Privacy concerns may arise as patients' options concerning privacy have been balanced to cater both the privacy of patients and the needs of healthcare, as well as secondary use of data. METHODS: This study examined privacy concerns among the users of a national patient portal in a representative sample of Finnish adults aged 20 to 99 years old (n = 3,731). We used logistic regression analysis with population weights to seek answers to which factors are associated with privacy concerns. The cross-sectional survey data was collected in 2020. RESULTS: Every third patient portal user had privacy concerns. Those who were 50 to 59 years old (p = 0.030) had privacy concerns more often than 20 to 49-year-olds. Those who had financial difficulties (p = 0.003) also had privacy concerns more often while those, who had good digital skills (p=<0.026), did not need guidance on telehealth service use (p=<0.001) and found telehealth service use to be beneficial (p = 0.008), had privacy concerns less often. CONCLUSION: The usefulness of telehealth seems to play an important role in privacy concerns. Another important factor is the skills required to use telehealth services. We encourage providing guidance to those who lack the necessary skills for telehealth service use. We also encourage putting effort not only into data protection and information security measures of telehealth services, but also into providing transparent and comprehensible privacy information for the service users as privacy concerns are common.
引言:寻求和接受医疗需要披露个人信息,这些信息将被记录在电子健康记录中。此后,信息的流动受到数据保护、信息安全、道德规范和法律的限制。由于患者的隐私选择已经平衡,既要满足患者的隐私需求,又要满足医疗保健的需求,以及数据的二次使用,因此可能会出现隐私问题。
方法:本研究在芬兰年龄在 20 至 99 岁的成年人(n=3731)的代表性样本中,调查了国家患者门户用户的隐私问题。我们使用具有人口权重的逻辑回归分析来寻找与隐私问题相关的因素。这项横断面调查数据于 2020 年收集。
结果:每三个患者门户用户就有一个存在隐私问题。50 至 59 岁的患者(p=0.030)比 20 至 49 岁的患者更常担心隐私问题。那些有经济困难的人(p=0.003)也更常担心隐私问题,而那些数字技能好的人(p<0.026)不需要远程医疗服务使用指导(p<0.001),并且认为远程医疗服务使用有益(p=0.008),他们的隐私问题较少。
结论:远程医疗的实用性似乎在隐私问题中起着重要作用。另一个重要因素是使用远程医疗服务所需的技能。我们鼓励为那些缺乏远程医疗服务使用所需技能的人提供指导。我们还鼓励不仅要努力保护数据和信息安全措施,还要为服务用户提供透明和易懂的隐私信息,因为隐私问题很常见。
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