Bueno Michael V
University of California, Irvine, USA.
J Fam Nurs. 2025 May;31(2):75-88. doi: 10.1177/10748407231222291. Epub 2024 Jan 11.
The population of family caregivers (FCGs) of persons with Alzheimer's disease and related dementias (ADRD) is growing, as is the proportion of males taking on this traditionally female role. Caregiving research has centered around women due to historic roles, resulting in a knowledge gap regarding male caregiving experiences. The purpose of this qualitative descriptive study was to explore the experiences of male FCGs of people with ADRD. Eleven male caregivers were recruited and interviewed by telephone or Zoom/videoconferencing. Data were analyzed using thematic analysis. Four major themes emerged highlighting males' struggles with the unfamiliar caregiving role and changing identity; their acknowledgment of personal growth and discovery through caregiving; their challenges in finding the "right" kind of support; and their perceived reshaping of masculinity through the caregiving role. Male caregivers expressed unique experiences as FCGs. Findings indicate the need for researchers and clinicians to develop tailored support to address their needs.
患有阿尔茨海默病及相关痴呆症(ADRD)患者的家庭护理人员(FCG)群体正在不断壮大,承担这一传统上由女性担任角色的男性比例也在增加。由于历史原因,护理研究一直以女性为中心,导致在男性护理经历方面存在知识空白。这项定性描述性研究的目的是探索ADRD患者男性家庭护理人员的经历。通过电话或Zoom/视频会议招募并采访了11名男性护理人员。采用主题分析法对数据进行分析。出现了四个主要主题,突出了男性在陌生护理角色和身份转变方面的挣扎;他们对通过护理实现个人成长和发现的认可;他们在寻找“合适”支持方面面临的挑战;以及他们认为护理角色重塑了男子气概。男性护理人员作为家庭护理人员表达了独特的经历。研究结果表明,研究人员和临床医生需要制定量身定制的支持措施来满足他们的需求。