Large Samantha, Slinger Richard
The University of Lancaster, UK.
The University of Lancaster, UK
Dementia (London). 2015 Mar;14(2):164-83. doi: 10.1177/1471301213494511. Epub 2013 Jul 11.
This article provides a meta-synthesis of studies focusing on grief in caregivers of people with Alzheimer's disease or related dementia. Through a systematic search, 11 articles met the inclusion criteria that care receivers had a diagnosis of Alzheimer's disease or related dementia, caregivers were informal caregivers, and the study focused on caregiver grief. The meta-synthesis followed a meta-ethnography approach based on reciprocal translation. Six themes were identified, namely challenges of caregiving, losses and changes in the relationship, the role of dementia in grief, striving despite dementia, utilising social support and death as a relief from caregiving. Themes are discussed within an integrated framework showing the connected relationships between themes. The devised framework of themes illustrates the general experience of caregiver grief and can be used to devise specific, targeted interventions to help caregivers to identify and work through their grief.
本文对聚焦于阿尔茨海默病或相关痴呆症患者照料者悲伤情绪的研究进行了元综合分析。通过系统检索，11篇文章符合纳入标准，即受照料者被诊断患有阿尔茨海默病或相关痴呆症，照料者为非正式照料者，且研究聚焦于照料者的悲伤情绪。该元综合分析采用了基于相互翻译的元民族志方法。确定了六个主题，即照料的挑战、关系中的损失与变化、痴呆症在悲伤中的作用、尽管患有痴呆症仍努力应对、利用社会支持以及将死亡视为照料负担的解脱。在一个综合框架内对这些主题进行了讨论，该框架展示了各主题之间的相互联系。所设计的主题框架阐释了照料者悲伤情绪的总体体验，可用于设计具体的、有针对性的干预措施，以帮助照料者识别并疏导他们的悲伤情绪。
