Varilek Brandon M, Mollman Sarah
South Dakota State University, College of Nursing, 2300 North Career Ave, Suite 260, Sioux Falls, SD 57107, USA.
South Dakota State University, College of Nursing - Office of Nursing Research, 1011 11 St, Rapid City, SD 57701, USA.
PEC Innov. 2023 Dec 17;4:100247. doi: 10.1016/j.pecinn.2023.100247. eCollection 2024 Dec.
This descriptive qualitative study sought to understand the barriers affecting cancer care delivery from the perspective of healthcare professionals (HCPs) serving American Indian (AI), rural, and frontier populations.
One-on-one, semi-structured interviews with multidisciplinary HCPs ( = 18) who provide cancer care to AI, rural, and frontier populations were conducted between January and April 2022. Interviews were conducted via Zoom. Data were analyzed following thematic content analysis methodologies.
Thematic content analysis revealed three major themes: (a) Access, (b) Time, and (c) Isolation. The themes represent the HCP perspectives of the needs and barriers of persons with cancer to whom they provide cancer care. Furthermore, these themes also reflect the barriers HCPs experience while providing cancer care to AI, rural and frontier populations.
This study provides preliminary evidence for the need and strong multidisciplinary support for an early palliative care intervention in rural and frontier South Dakota (SD). This intervention could support the needs of persons with advanced cancer as well as the HCPs delivering cancer care in rural settings.
This study is the initial step to develop the first culturally responsive, nurse-led, early palliative care intervention for AI, rural, and frontier persons with advanced cancer in SD.
本描述性定性研究旨在从为美国印第安人(AI)、农村和偏远地区人群提供癌症护理的医疗保健专业人员(HCPs)的角度,了解影响癌症护理提供的障碍。
2022年1月至4月期间,对为AI、农村和偏远地区人群提供癌症护理的多学科HCPs(n = 18)进行了一对一的半结构化访谈。访谈通过Zoom进行。数据采用主题内容分析法进行分析。
主题内容分析揭示了三个主要主题:(a)可及性,(b)时间,以及(c)孤立感。这些主题代表了HCPs对他们所护理的癌症患者的需求和障碍的看法。此外,这些主题也反映了HCPs在为AI、农村和偏远地区人群提供癌症护理时所遇到的障碍。
本研究为南达科他州(SD)农村和偏远地区早期姑息治疗干预的必要性和强大的多学科支持提供了初步证据。这种干预可以满足晚期癌症患者的需求,以及在农村地区提供癌症护理的HCPs的需求。
本研究是为SD的AI、农村和偏远地区晚期癌症患者开发首个具有文化适应性、由护士主导的早期姑息治疗干预措施的第一步。