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Gerontologist. 2022 May 26;62(5):732-741. doi: 10.1093/geront/gnac018.
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A Federal Indian Health Insurance Plan: Fulfilling a solemn obligation to American Indians and Alaska Natives in the United States.一项联邦印第安人健康保险计划:履行对美国印第安人和阿拉斯加原住民的庄严义务。
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4
A lay navigator-led, early palliative care intervention for African American and rural family caregivers of individuals with advanced cancer (Project Cornerstone): Results of a pilot randomized trial.一项由非专业导航员主导的、针对晚期癌症患者的非裔美国人和农村家庭照顾者的早期姑息治疗干预(基石项目):一项试点随机试验的结果。
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Closing the Rural Cancer Care Gap: Three Institutional Approaches.缩小农村地区癌症治疗差距:三种机构方法。
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Evaluating Travel Distance to Radiation Facilities Among Rural and Urban Breast Cancer Patients in the Medicare Population.评估医疗保险人群中农村和城市乳腺癌患者到放射治疗设施的旅行距离。
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8
The project ENABLE Cornerstone randomized pilot trial: Protocol for lay navigator-led early palliative care for African-American and rural advanced cancer family caregivers.“赋能基石”项目随机对照试验:针对非裔美国人和农村晚期癌症家庭照护者的由非专业导航员主导的早期姑息治疗方案
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9
Financial hardship among rural cancer survivors: An analysis of the Medical Expenditure Panel Survey.农村癌症幸存者的经济困难:医疗支出面板调查分析。
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10
Communication Skills: Delivering Bad News, Conducting a Goals of Care Family Meeting, and Advance Care Planning.沟通技巧:传达坏消息、召开护理目标家庭会议及预先护理计划。
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医疗保健专业人员对美国印第安人、农村和偏远地区人群癌症护理提供障碍的看法。

Healthcare professionals' perspectives of barriers to cancer care delivery for American Indian, rural, and frontier populations.

作者信息

Varilek Brandon M, Mollman Sarah

机构信息

South Dakota State University, College of Nursing, 2300 North Career Ave, Suite 260, Sioux Falls, SD 57107, USA.

South Dakota State University, College of Nursing - Office of Nursing Research, 1011 11 St, Rapid City, SD 57701, USA.

出版信息

PEC Innov. 2023 Dec 17;4:100247. doi: 10.1016/j.pecinn.2023.100247. eCollection 2024 Dec.

DOI:10.1016/j.pecinn.2023.100247
PMID:38225930
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10788248/
Abstract

OBJECTIVE

This descriptive qualitative study sought to understand the barriers affecting cancer care delivery from the perspective of healthcare professionals (HCPs) serving American Indian (AI), rural, and frontier populations.

METHODS

One-on-one, semi-structured interviews with multidisciplinary HCPs ( = 18) who provide cancer care to AI, rural, and frontier populations were conducted between January and April 2022. Interviews were conducted via Zoom. Data were analyzed following thematic content analysis methodologies.

RESULTS

Thematic content analysis revealed three major themes: (a) Access, (b) Time, and (c) Isolation. The themes represent the HCP perspectives of the needs and barriers of persons with cancer to whom they provide cancer care. Furthermore, these themes also reflect the barriers HCPs experience while providing cancer care to AI, rural and frontier populations.

CONCLUSIONS

This study provides preliminary evidence for the need and strong multidisciplinary support for an early palliative care intervention in rural and frontier South Dakota (SD). This intervention could support the needs of persons with advanced cancer as well as the HCPs delivering cancer care in rural settings.

INNOVATION

This study is the initial step to develop the first culturally responsive, nurse-led, early palliative care intervention for AI, rural, and frontier persons with advanced cancer in SD.

摘要

目的

本描述性定性研究旨在从为美国印第安人(AI)、农村和偏远地区人群提供癌症护理的医疗保健专业人员(HCPs)的角度,了解影响癌症护理提供的障碍。

方法

2022年1月至4月期间,对为AI、农村和偏远地区人群提供癌症护理的多学科HCPs(n = 18)进行了一对一的半结构化访谈。访谈通过Zoom进行。数据采用主题内容分析法进行分析。

结果

主题内容分析揭示了三个主要主题:(a)可及性,(b)时间,以及(c)孤立感。这些主题代表了HCPs对他们所护理的癌症患者的需求和障碍的看法。此外,这些主题也反映了HCPs在为AI、农村和偏远地区人群提供癌症护理时所遇到的障碍。

结论

本研究为南达科他州(SD)农村和偏远地区早期姑息治疗干预的必要性和强大的多学科支持提供了初步证据。这种干预可以满足晚期癌症患者的需求,以及在农村地区提供癌症护理的HCPs的需求。

创新点

本研究是为SD的AI、农村和偏远地区晚期癌症患者开发首个具有文化适应性、由护士主导的早期姑息治疗干预措施的第一步。