Postgraduate Program in Dentistry, State University of Paraíba, Campina Grande, Brazil.
Academic Unit of Biological Sciences, Federal University of Campina Grande, Patos, Brazil.
Int J Paediatr Dent. 2024 Sep;34(5):593-607. doi: 10.1111/ipd.13160. Epub 2024 Jan 16.
Caregivers play a crucial role in assessing the oral health-related quality of life (OHRQoL) of young individuals with autism spectrum disorder (ASD).
This study assessed the impact of sociodemographic and oral conditions on OHRQoL and family dynamics in young individuals with and without autism, as perceived by guardians.
This comparative cross-sectional study included young individuals aged 6 to 14 years and their guardians. Data were collected at a specialized institution and dental schools. Guardians completed the Parental-Caregiver Perceptions Questionnaire (P-CPQ), Family Impact Scale (FIS), and sociodemographic and oral habits questionnaires. The sociopsychological need for orthodontic treatment was assessed using the Index of Orthodontic Treatment Need (IOTN).
The sample included 144 youths and caregivers. The ASD group had higher P-CPQ and FIS scores. Factors associated with poorer perceived OHRQoL included higher youth age, lower caregiver education, higher IOTN scores, teeth clenching (RR = 1.20; 95% CI: 1.01-1.41), and lip sucking. Lower parental education (RR = 1.75; 95% CI: 1.10-2.80) and higher IOTN scores from the caregiver's perspective impacted family dynamics.
Caregivers of young individuals with ASD perceived a lower OHRQoL, and families in this group were more affected by sociodemographic and oral conditions.
照顾者在评估自闭症谱系障碍(ASD)的年轻个体的口腔健康相关生活质量(OHRQoL)方面起着至关重要的作用。
本研究评估了社会人口学和口腔状况对自闭症和非自闭症年轻个体的 OHRQoL 和家庭动态的影响,由监护人感知。
这是一项比较性横断面研究,纳入了 6 至 14 岁的年轻个体及其监护人。数据在专门机构和牙科学校收集。监护人填写了父母/照顾者感知问卷(P-CPQ)、家庭影响量表(FIS)以及社会人口学和口腔习惯问卷。使用正畸治疗需求指数(IOTN)评估正畸治疗的社会心理需求。
样本包括 144 名青少年和照顾者。ASD 组的 P-CPQ 和 FIS 评分较高。与较差的感知 OHRQoL 相关的因素包括青少年年龄较大、照顾者教育程度较低、IOTN 评分较高、磨牙(RR=1.20;95%CI:1.01-1.41)和吮唇。父母教育程度较低(RR=1.75;95%CI:1.10-2.80)和照顾者视角下更高的 IOTN 评分会影响家庭动态。
ASD 年轻个体的照顾者感知到更低的 OHRQoL,而该群体的家庭受到社会人口学和口腔状况的影响更大。