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家长对自闭症谱系障碍(ASD)儿童和青少年口腔健康相关生活质量的感知。

Parental Perception of the Oral Health-Related Quality of Life of Children and Adolescents with Autism Spectrum Disorder (ASD).

机构信息

Department of Health Sciences and Pediatric Dentistry, Piracicaba Dental School, University of Campinas, Piracicaba 13414-903, SP, Brazil.

Department of Dentistry, Life Sciences Institute, Federal University of Juiz de Fora, Governador Valadares 35020-360, MG, Brazil.

出版信息

Int J Environ Res Public Health. 2023 Jan 9;20(2):1151. doi: 10.3390/ijerph20021151.

Abstract

This study evaluated the parental perception of the oral health-related quality of life (OHRQoL) of children and adolescents with autism spectrum disorder (ASD) and their family functioning. Moreover, sociodemographic factors associated with parental ratings of OHRQoL were assessed. A hundred parents/guardians of children and adolescents aged 6 to 14 years with ASD (ASD group) and 101 unaffected children and adolescents (UCA group) participated. Data collection was carried out using a Google form, containing three sections: (1st) Socioeconomic data and health history; (2nd) Oral health assessment by parental report; (3rd) The short forms of the Parental-Caregiver Perceptions Questionnaire (16-P-CPQ) and the Family Impact Scale (4-FIS). The scores of 16-P-CPQ total and subscales and 4-FIS were significantly higher for the ASD group (p < 0.02), except for the oral symptoms subscale (p > 0.05). Older ages (OR = 1.24), brushing 0/1x day (OR = 2.21), teeth grinding (OR = 2.20), gingival bleeding (OR = 3.34), parents with an elementary school degree (OR = 0.314) and family incomes less or equal to the minimum wage (OR = 3.049) were associated with a worse OHRQoL. Parents in the ASD group had a worse perception of QHRQoL when compared to the UCA group. ‘Frequency of tooth brushing’, ‘gingival bleeding’, and ‘teeth grinding’ were predictors of the worst parental perception of their children’s OHRQoL. Families with low socioeconomic conditions were more strongly affected by the oral conditions of their children.

摘要

本研究评估了自闭症谱系障碍(ASD)儿童和青少年的父母对其口腔健康相关生活质量(OHRQoL)的感知及其家庭功能。此外,还评估了与父母 OHRQoL 评分相关的社会人口因素。100 名 6 至 14 岁 ASD 儿童和青少年的父母/监护人(ASD 组)和 101 名未受影响的儿童和青少年(UCA 组)参与了研究。数据收集通过 Google 表格进行,包含三个部分:(1)社会经济数据和健康史;(2)父母报告的口腔健康评估;(3)父母-照顾者感知问卷(16-P-CPQ)和家庭影响量表(4-FIS)的简短版本。ASD 组的 16-P-CPQ 总分和子量表以及 4-FIS 得分均显著更高(p<0.02),但口腔症状子量表除外(p>0.05)。年龄较大(OR=1.24)、每天刷牙 0/1 次(OR=2.21)、磨牙(OR=2.20)、牙龈出血(OR=3.34)、父母具有小学学历(OR=0.314)和家庭收入等于或低于最低工资(OR=3.049)与较差的 OHRQoL 相关。与 UCA 组相比,ASD 组的父母对 QHRQoL 的感知更差。“刷牙频率”、“牙龈出血”和“磨牙”是父母对子女 OHRQoL 感知最差的预测因素。社会经济条件较低的家庭受到子女口腔状况的影响更大。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0acd/9859466/9bc39671bc49/ijerph-20-01151-g001.jpg

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