Tenti Michael, Raffaeli William, Paroli Mery, Gamberi Gabriele, Vincis Riccardo, Suzzi Barbara, Fagnani Corrado, Camoni Laura, Toccaceli Virgilia
ISAL Foundation, Institute for Research on Pain, 47921 Rimini, Italy.
Anesthesiology and Pain Therapy Unit, Santa Chiara University Hospital, 56126 Pisa, Italy.
Healthcare (Basel). 2024 Jan 16;12(2):216. doi: 10.3390/healthcare12020216.
Fibromyalgia symptoms affect the sufferers' working life; however, through reasonable accommodations in workplaces, they can continue to work satisfactorily. There are no Italian studies on factors that facilitate or hinder fibromyalgia-affected people's working life. Our objective was to explore, in a pre-pandemic setting, the quality of working life of fibromyalgia sufferers and reasonable accommodations to improve it. Quantitative and qualitative methods were applied; a survey-questionnaire, participatory-developed, was online-administered to a sample of self-reported FM sufferers (N = 1176). Then, two Focus Groups (FGs), involving 15 fibromyalgia-affected women, were held. Data were analyzed by a thematic analysis approach. Among survey-respondents, 20% were unemployed and only 14% went to work gladly. Variability of pain (84%) and fatigue (90%) were the most perceived reasons for difficulties at work. Negative relationships at work were reported by most participants. The FGs' discussions addressed different strategies for overcoming the main obstacle of "not being believed by colleagues and employers" and reasonable accommodations. However, a negative hopeless attitude towards the solution of problems at work was also apparent. Different critical issues in the workplace emerged from the survey and the FGs. Coordinated actions, according to a transdisciplinary approach, are needed to manage fibromyalgia-induced difficulties in the workplace.
纤维肌痛症状会影响患者的工作生活;然而,通过工作场所的合理调整,他们能够继续令人满意地工作。意大利尚无关于促进或阻碍纤维肌痛患者工作生活的因素的研究。我们的目标是在疫情之前的背景下,探讨纤维肌痛患者的工作生活质量以及改善这种状况的合理调整措施。我们采用了定量和定性方法;通过在线方式向自我报告患有纤维肌痛的1176名患者样本发放了一份参与式开发的调查问卷。然后,举行了两个焦点小组讨论,有15名受纤维肌痛影响的女性参与。采用主题分析方法对数据进行了分析。在调查对象中,20%的人失业,只有14%的人乐意去工作。疼痛(84%)和疲劳(90%)的变化是工作中遇到困难的最主要原因。大多数参与者都表示工作中存在负面人际关系。焦点小组讨论了克服“不被同事和雇主信任”这一主要障碍的不同策略以及合理调整措施。然而,对于解决工作中的问题,消极绝望的态度也很明显。调查和焦点小组讨论揭示了工作场所中不同的关键问题。需要根据跨学科方法采取协调行动,以应对纤维肌痛给工作场所带来的困难。