帕金森病患者的内化症状报告与知情人报告之间的不一致：一项在线调查的结果。
Discordance between Reports of Internalized Symptoms in Persons with Parkinson's Disease and Informants: Results from an Online Survey.
机构信息
Department of Psychological and Brain Sciences, Boston University, Boston, MA, USA.
Department of Psychology, Bridgewater State University, Bridgewater, MA, USA.
出版信息
Mov Disord Clin Pract. 2024 Apr;11(4):391-397. doi: 10.1002/mdc3.13971. Epub 2024 Jan 25.
BACKGROUND
Self-report of motor and non-motor symptoms is integral to understanding daily challenges of persons with Parkinson's disease (PwPD). Care partners are often asked to serve as informants regarding symptom severity, raising the question of concordance with PwPD self-reports, especially regarding internalized (not outwardly visible) symptoms.
OBJECTIVES
Concordance between PwPD and informant ratings of motor and non-motor symptoms was evaluated across multiple domains.
METHODS
In 60 PwPD-informant pairs, we compared ratings on 11 online self-report measures comprising 33 total scores, 2/3 of which represented purely internalized symptoms. For discordant scores, multiple regression analyses were used to examine demographic/clinical predictors.
RESULTS
Though concordant on 85% of measures, PwPD endorsed more non-motor symptoms, bodily discomfort, stigma, and motor symptoms than informants. For PwPD, younger age, greater disease severity, and female gender predicted discordance.
CONCLUSIONS
Discordance between PwPD and informants on measures assessing symptoms that cannot be outwardly observed may require targeted education.
背景
自我报告的运动和非运动症状是理解帕金森病患者（PwPD）日常挑战的重要组成部分。经常要求护理人员作为症状严重程度的信息提供者，这引发了一个问题，即他们与 PwPD 自我报告的一致性，尤其是针对内化（不可见）症状。
目的
评估 PwPD 和信息提供者在多个领域对运动和非运动症状的评定是否一致。
方法
在 60 对 PwPD-信息提供者配对中，我们比较了 11 项在线自我报告测量的评分，这些测量共包含 33 个总分数，其中 2/3 代表纯粹的内化症状。对于不一致的分数，我们使用多元回归分析来检查人口统计学/临床预测因素。
结果
尽管在 85%的测量上是一致的，但 PwPD 报告的非运动症状、身体不适、耻辱感和运动症状比信息提供者多。对于 PwPD 来说，年龄较小、疾病严重程度较高和女性性别预测了不一致。
结论
对于那些无法通过外表观察到的症状评估测量的 PwPD 和信息提供者之间的不一致，可能需要有针对性的教育。
Zotero 插件