Tsentemeidou Aikaterini, Sotiriou Elena, Bakirtzi Katerina, Papadimitriou Ilias, Chatzi-Sotiriou Themis, Panagopoulou Angeliki, Kougkas Nikolaos, Lallas Aimilios, Vakirlis Efstratios
First Department of Dermatology and Venereology, School of Medicine, Aristotle University, Thessaloniki, Greece.
Department of International and European Studies, School of Social Sciences, Humanities and Arts, University of Macedonia, Thessaloniki, Greece.
Mediterr J Rheumatol. 2023 Aug 22;34(4):469-478. doi: 10.31138/mjr.220823.qoe. eCollection 2023 Dec.
Hidradenitis suppurativa (HS) principally affects women of childbearing age, who face gender-specific challenges and have lower life-quality than men. HS also seems to impact desire for procreation.
To investigate various quality-of-life endpoints in women of childbearing age with HS.
A cross-sectional questionnaire-based study was performed at a university dermatology department. Eighteen yes/no and one open-ended questions explored impact of HS on social life, sexual life, family planning, working life and healthcare-backed support. A sensitivity analysis was performed for women under 25, who are significantly less likely to be married/in a permanent relationship in Greece, as this could act as a confounding factor regarding family planning.
Ninety-six women were included. Most women (80.8%) carry a stigma because of HS, which also affects their choice of clothes and social relationships. Sexual impairment affects 73.1% of women. One third of women wants less or no children because of HS, 67.7% worry about its impact on pregnancy, birth, and the postpartum, and 84.6% worry about the impact of HS treatment on fertility and their babies' health. Almost 43% fear losing their job because of HS, 34.4% are discriminated against at work and 33.3% state HS has hindered their career. Most women are not adequately informed about their disease or available support groups/material and 41.7% have not received good enough care through pregnancy/postpartum.
Life-quality endpoints should be meticulously screened in women. Multidisciplinary-led treatment should be offered during pregnancy and the postpartum.
化脓性汗腺炎（HS）主要影响育龄女性，她们面临特定性别的挑战，生活质量低于男性。HS似乎也会影响生育意愿。
调查患有HS的育龄女性的各种生活质量指标。
在一所大学的皮肤科进行了一项基于问卷调查的横断面研究。18个是/否问题和1个开放式问题探讨了HS对社交生活、性生活、计划生育、工作生活和医疗支持的影响。对25岁以下的女性进行了敏感性分析，在希腊，这个年龄段的女性结婚/处于长期关系的可能性显著较低，因为这可能是计划生育方面的一个混杂因素。
纳入了96名女性。大多数女性（80.8%）因HS而背负污名感，这也影响了她们的着装选择和社会关系。73.1%的女性存在性功能障碍。三分之一的女性因HS想要少生或不生孩子，67.7%的女性担心HS对怀孕、分娩和产后的影响，84.6%的女性担心HS治疗对生育能力和宝宝健康的影响。近43%的女性担心因HS失去工作，34.4%的女性在工作中受到歧视，33.3%的女性表示HS阻碍了她们的职业发展。大多数女性对自己的疾病或现有的支持团体/资料了解不足，41.7%的女性在孕期/产后没有得到足够好的护理。
应仔细筛查女性的生活质量指标。在孕期和产后应提供多学科主导的治疗。
