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男性照顾癌症患者的体验:基于数据的理论。

Men's experience of caring for a family member with cancer: a theory based on data.

机构信息

Universidade Federal de Santa Maria, Santa Maria, RS, Brazil.

Universidade Federal de Santa Maria, Departamento de Enfermagem, Santa Maria, RS, Brazil.

出版信息

Rev Lat Am Enfermagem. 2024 Jan 26;32:e4095. doi: 10.1590/1518-8345.6679.4095. eCollection 2024.

Abstract

OBJECTIVE

to understand the meaning attributed by men to the experience of caring for their family member with cancer and to develop a substantive theory that represents the experience of men caring for their family member with cancer.

METHOD

this is qualitative research guided by the methodological framework of Grounded Theory and the precepts of Symbolic Interactionism. A form with identification and interview data was used. The analysis followed the substantive and theoretical coding stages.

RESULTS

12 male caregivers of their family member with cancer participated. The constant comparative analysis of the data allowed the creation of a substantive theory "Experiencing the care of a family member with cancer: men as a caregivers" explaining the experience that has as its central category "The love that drives care", representing the symbolic actions and attitudes of men living in the context of illness due to cancer and care.

CONCLUSION

the theory allowed us to understand feelings, perceptions, ways of acting and facing the diagnosis, providing care, recognizing difficulties and learning from the situations that arise, making explicit the interactional processes and symbolic elements present and how these influence male caregivers in their actions and attitudes.

BACKGROUND

(1) For men, caring is a choice (2) Taking care symbolizes a way of expressing love and reciprocation. (3) Love in caring is strengthened by reciprocity, commitment, gratitude and zeal. (4) To provide care, man reorganizes himself and adjusts to the conditions that present themselves (5) Male caregivers need to be heard and included in the actions of health teams.

摘要

目的

了解男性对照顾癌症患者家属的经历的看法,并构建一个代表男性照顾癌症患者家属的经验的实质性理论。

方法

这是一项基于扎根理论方法框架和符号互动主义原则的定性研究。使用了带有身份识别和访谈数据的表格。分析遵循实质性和理论性编码阶段。

结果

12 名男性照顾癌症患者的家属。对数据的恒定性比较分析创建了一个实质性理论“照顾癌症患者家属的经历:男性作为照顾者”,解释了以“推动照顾的爱”为核心范畴的经验,代表了由于癌症和照顾而处于疾病背景下的男性的象征性行动和态度。

结论

该理论使我们能够理解男性的感受、认知、行为方式和面对诊断、提供照顾、认识困难以及从出现的情况中学习的方式,明确了互动过程和存在的符号元素,以及这些元素如何影响男性照顾者的行为和态度。

背景

(1)对男性来说,照顾是一种选择;(2)照顾象征着一种表达爱和回报的方式;(3)在照顾中,爱通过相互作用、承诺、感激和热情得到加强;(4)提供照顾,男性会重新组织自己并适应出现的情况;(5)男性照顾者需要被倾听并纳入医疗团队的行动中。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fbcf/10825896/72a2e68f4211/1518-8345-rlae-32-e4094-f1.jpg

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