照护者负担过重及与姑息治疗患者照护相关的因素。
Caregiver overload and factors associated with care provided to patients under palliative care.
机构信息
Escola de Enfermagem de Ribeirão Preto da Universidade de São Paulo, Brazil,
Escola de Enfermagem da Universidade de São Paulo, Brazil,
出版信息
Invest Educ Enferm. 2021 Feb;39(1). doi: 10.17533/udea.iee.v39n1e10.
OBJECTIVES
To identify overload and associated factors among caregivers of adult patients receiving palliative care.
METHODS
Descriptive, quantitative, and cross-sectional study addressing 40 adults under palliative care and their respective caregivers enrolled in the Home Care System in Ribeirão Preto, Brazil. Data concerning the patients included demographic profile and Mini-Mental State Examination. A form was used to collect the caregivers' demographic data along with the Zarit Burden Interview Scale, Self-Reporting Questionnaire, Beck Depression Inventory, and Coping Strategies Inventory.
RESULTS
Regarding the patients, 84.2% were women, 52.6% were over 80, 65.8% had no partner, and 76.3% presented cognitive impairment. The caregivers were mostly women (84.5%), aged 56.67 years old on average, were the patients' children (42.5%); had no partner (55%), and lived with the patient (77.5%). The mean score obtained in the burden scale was 28.78 points, 32.5% had stress, and 42.5% depression. Regarding coping strategies, the ones most frequently used were positive reappraisal (12.8), withdrawal (10.2), and problem solution (9.7). A positive and statistically significant correlation was found between time spent with care (days and hours) and escape/avoidance with overload. Linear regression analysis revealed an association between being a woman (p=0.002), number of days spent with care (p=0.004), and depression (p<0.001) with overload.
CONCLUSIONS
Being a woman, spending more days providing care, and depressive symptoms were associated with caregiver overload.
目的
识别接受姑息治疗的成年患者照顾者的负担及其相关因素。
方法
这是一项描述性、定量和横断面研究，共纳入了巴西里贝朗普雷图市家庭护理系统中 40 名接受姑息治疗的成年患者及其各自的照顾者。患者的数据包括人口统计学特征和简易精神状态检查。使用一份表格收集照顾者的人口统计学数据，以及照顾者负担量表、自我报告问卷、贝克抑郁量表和应对策略量表。
结果
在患者中，84.2%为女性，52.6%年龄超过 80 岁，65.8%没有伴侣，76.3%存在认知障碍。照顾者主要为女性（84.5%），平均年龄为 56.67 岁，为患者的子女（42.5%）；55%没有伴侣，77.5%与患者同住。负担量表的平均得分为 28.78 分，32.5%有压力，42.5%有抑郁。关于应对策略，最常使用的是积极重评（12.8%）、退缩（10.2%）和问题解决（9.7%）。与照顾时间（天数和小时）和逃避/回避与负担呈正相关，且具有统计学意义。线性回归分析显示，女性（p=0.002）、照顾天数（p=0.004）和抑郁（p<0.001）与负担有关。
结论
女性、照顾时间更长和抑郁症状与照顾者负担有关。
Zotero 插件