Portsmouth Hospitals University NHS Trust, Portsmouth, UK.
University of Southampton, Southampton, UK.
Disabil Rehabil. 2024 Nov;46(23):5640-5650. doi: 10.1080/09638288.2024.2307384. Epub 2024 Feb 12.
Outcome measurement provides clinicians, services and funders with useful information. However, little is known about the experience of participating in outcome measurement during lower limb prosthetic rehabilitation from the patient's perspective.
Thirty-two participants who underwent lower limb amputation within 5 years, and had experience of taking part in outcome measurement during prosthetic rehabilitation, were recruited from UK limb fitting centers and social media. Data were collected using focus groups and interviews and analysed using reflexive thematic analysis.
Four themes were identified. (1) How does participating in outcome measurement make feel? (2) Do the outcome measures used in routine clinical care capture an accurate picture of my recovery? (3) Who is outcome measurement for? and (4) are prosthetic services measuring what is meaningful? These themes suggest outcome measurement is not a neutral activity for patients following lower limb amputation.
Harnessing the positive impacts of measuring outcomes could be used for motivation, to support adjustment and recovery, to improve communication and to support shared decision-making. This could make outcome measurement more meaningful and patient-centered. However, there may be potential for patients to respond negatively to outcome measures and clinicians should consider their impact on psychosocial factors.
结果测量为临床医生、服务提供者和资金提供者提供了有用的信息。然而，从患者的角度来看，对于参与下肢假肢康复过程中的结果测量的体验，人们知之甚少。
从英国肢体装配中心和社交媒体招募了 32 名在 5 年内接受过下肢截肢手术且有参与假肢康复过程中结果测量经验的参与者。使用焦点小组和访谈收集数据，并使用反思性主题分析进行分析。
确定了四个主题。（1）参与结果测量让参与者有何感受？（2）常规临床护理中使用的结果测量方法是否准确反映了我的康复情况？（3）结果测量是为谁服务的？（4）假肢服务是否在衡量有意义的内容？这些主题表明，下肢截肢后的患者参与结果测量并不是一项中立的活动。
利用衡量结果的积极影响可以用于激励、支持调整和康复、改善沟通和支持共同决策。这可以使结果测量更加有意义和以患者为中心。然而，患者可能会对结果测量产生负面反应，临床医生应该考虑其对心理社会因素的影响。
