Physiotherapy Department, Psychology Department, Beaumont Hospital, Dublin, Ireland.
School of Physiotherapy, School of Medicine, Royal College of Surgeons, Dublin, Ireland.
Brain Behav. 2024 Feb;14(2):e3362. doi: 10.1002/brb3.3362.
Functional neurological disorder (FND) is a common and often disabling condition. Limited access to services for FND poses challenges both for patients and their health care providers. This survey explored the attitudes, experiences, support needs and training needs of health care professionals (HCPs) who provide care to individuals with FND in Ireland.
A broad range of HCPs working with patients with FND in Ireland partook in an anonymous online 12-item survey. Participants were recruited via professional bodies and snowball convenience sampling utilising social media and email invitation. Descriptive and inferential statistics were employed to analyze data.
A total of 314 HCPs working in Ireland completed the survey. 80% were female and over half worked in their current role for more than 10 years. 75% of the sample encountered three or less individuals with FND per month. Identified service-related challenges to effective patient care included insufficient clinic time, lack of confidence explaining the diagnosis, and the need for greater access to specialist support. Data revealed persisting negative attitudes toward FND patients among a proportion of respondents. The majority of respondents did not feel they received adequate education on FND, with the exception of neurologists, of whom 65% felt adequately trained. The majority of respondents (85%) also felt that people with FND did not have access to appropriate FND services in Ireland.
This study indicates that there is a significant need to improve FND education among HCPs in Ireland, in addition to developing appropriately resourced, integrated, multidisciplinary care pathways for the FND patient group.
功能性神经障碍(FND)是一种常见且常导致残疾的疾病。FND 服务的有限获取对患者及其医疗保健提供者都构成了挑战。本调查探讨了爱尔兰为 FND 患者提供护理的医疗保健专业人员(HCP)的态度、经验、支持需求和培训需求。
爱尔兰广泛的 HCP 参与了一项匿名在线 12 项调查。参与者通过专业机构和利用社交媒体和电子邮件邀请的雪球便利抽样进行招募。采用描述性和推断性统计方法分析数据。
共有 314 名在爱尔兰工作的 HCP 完成了调查。80%为女性,超过一半的人在当前岗位工作超过 10 年。75%的样本每月遇到的 FND 患者不到 3 人。确定的与有效患者护理相关的服务挑战包括诊所时间不足、缺乏解释诊断的信心,以及需要更多获得专业支持的机会。数据显示,在一部分受访者中,对 FND 患者仍存在持续的负面态度。大多数受访者认为他们没有接受过足够的 FND 教育,除了神经科医生,其中 65%的人认为他们接受过充分的培训。大多数受访者(85%)还认为 FND 患者在爱尔兰无法获得适当的 FND 服务。
本研究表明,爱尔兰 HCP 非常需要改善 FND 教育,除了为 FND 患者群体开发资源充足、综合、多学科的护理途径。