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沙特阿拉伯多发性硬化症患者预期的耻辱感。

Anticipated Stigma among Patients with Multiple Sclerosis in Saudi Arabia.

作者信息

Albarraq Rahaf Hamood, Alhujaili Naseem Abdulmohi, Alshehri Ziyad Ibrahim, Alqarni Abdullah Mohammed, Bawareth Rime Mohammed

机构信息

Faculty of Medicine in Jeddah, King Abdulaziz University, Jeddah, Saudi Arabia.

Department of Medicine, Division of Psychiatry, Faculty of Medicine in Rabigh, King Abdulaziz University, Jeddah, Saudi Arabia.

出版信息

Saudi J Med Med Sci. 2024 Jan-Mar;12(1):54-59. doi: 10.4103/sjmms.sjmms_21_23. Epub 2024 Jan 15.

Abstract

BACKGROUND

Social stigma is a major problem among patients with multiple sclerosis (MS), which can affect their quality of life. There is limited research from Saudi Arabia on the anticipated stigma among patients with MS.

OBJECTIVES

To determine the levels of anticipated stigma and its predictors in patients with MS in Saudi Arabia.

METHODS

This cross-sectional study included adult patients with MS across Saudi Arabia. Sociodemographic and medical information, including age, gender, marital status, educational level, duration of disease, number of MS episodes in the past 12 months, previous diagnosis of mental illness, and performing activities of daily living without assistance, were collected. Anticipated stigma was measured using an Arabic version of the Chronic Illness Anticipated Stigma Scale.

RESULTS

A total of 222 patients with MS were included. Moderate to severe anticipated stigma was found among 70.4% of the patients. The highest anticipated stigma mean score was from work colleagues (2.96/5). Predictors of stigma were age ( = 0.049), gender ( = 0.016), marital status ( = 0.015), education level ( = 0.003), number of MS episodes in the previous year ( < 0.001), and previous diagnosis of a mental disorder ( = 0.001).

CONCLUSIONS

The findings of this study indicate the need for developing programs that reduce the anticipated stigma among patients with MS in Saudi Arabia.

摘要

背景

社会污名是多发性硬化症(MS)患者面临的一个主要问题,会影响他们的生活质量。沙特阿拉伯针对MS患者预期污名的研究有限。

目的

确定沙特阿拉伯MS患者的预期污名水平及其预测因素。

方法

这项横断面研究纳入了沙特阿拉伯成年MS患者。收集了社会人口学和医学信息,包括年龄、性别、婚姻状况、教育水平、病程、过去12个月内MS发作次数、既往精神疾病诊断以及无需协助进行日常生活活动的情况。使用阿拉伯语版的慢性病预期污名量表测量预期污名。

结果

共纳入222例MS患者。70.4%的患者存在中度至重度预期污名。预期污名平均得分最高的是同事(2.96/5)。污名的预测因素包括年龄(P = 0.049)、性别(P = 0.016)、婚姻状况(P = 0.015)、教育水平(P = 0.003)、上一年MS发作次数(P < 0.001)以及既往精神障碍诊断(P = 0.001)。

结论

本研究结果表明,有必要制定相关项目以减少沙特阿拉伯MS患者的预期污名。

相似文献

1
Anticipated Stigma among Patients with Multiple Sclerosis in Saudi Arabia.沙特阿拉伯多发性硬化症患者预期的耻辱感。
Saudi J Med Med Sci. 2024 Jan-Mar;12(1):54-59. doi: 10.4103/sjmms.sjmms_21_23. Epub 2024 Jan 15.

本文引用的文献

8
Perception of stigma in patients with primary progressive multiple sclerosis.原发性进行性多发性硬化症患者对耻辱感的认知
Mult Scler J Exp Transl Clin. 2019 May 22;5(2):2055217319852717. doi: 10.1177/2055217319852717. eCollection 2019 Apr-Jun.

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