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评估关于精神分裂症的患者及其家属的在线信息的可读性和质量。

Assessment of the Readability and Quality of Online Information for Patients and Their Families Regarding Schizophrenia.

机构信息

Psychiatry Department, Uşak Oztan Hospital.

Uşak University Medical Faculty, Uşak, Türkiye.

出版信息

J Nerv Ment Dis. 2024 May 1;212(5):278-283. doi: 10.1097/NMD.0000000000001763. Epub 2024 Jan 25.

DOI:10.1097/NMD.0000000000001763
PMID:38416420
Abstract

To our knowledge, this is the first study that specifically aims to assess the readability and quality of online information about schizophrenia. The analysis is performed on 93 of 195 websites that appeared in an advanced Google search of the term "schizophrenia" performed on a single day. The websites were categorized as commercial, nonprofit, professional, and government. The websites were evaluated using the Health on the Net Foundation (HON) code certificate, DISCERN tool, and Journal of the American Medical Association ( JAMA ) benchmark criteria for quality and the Flesch Reading Ease Formula, Flesch-Kincaid Grade Level (FKGL) Formula, Simple Measure of Gobbledygook, and Gunning Fog indices for readability. A total of 21.5% of all websites had a HON code certificate, 50.5% were accepted as high quality ( JAMA score ≥3), and 25.8% reached the recommended readability level (FKGL ≤8). Only three websites scored at a fifth- to sixth-grade reading level. Commercial and government websites had significantly lower DISCERN scores. Commercial websites had significantly lower Flesch Reading Ease Score and FKGL score than nonprofit websites. In conclusion, the current findings indicate that the quality of online information on schizophrenia is generally acceptable, but the readability is insufficient. Website creators, physicians, and health authorities should be more sensitive to the readability of online information about schizophrenia, considering the poor cognitive capacity of the patients and the unique nature of the disease.

摘要

据我们所知,这是第一项专门评估精神分裂症在线信息可读性和质量的研究。该分析基于在某一天对“精神分裂症”一词进行高级谷歌搜索后出现的 195 个网站中的 93 个网站进行。这些网站被分为商业、非营利、专业和政府网站。使用健康在线基金会 (HON) 代码证书、DISCERN 工具、美国医学会杂志 (JAMA) 质量基准标准以及 Flesch 阅读舒适度公式、Flesch-Kincaid 年级水平 (FKGL) 公式、简单测量难词度和 Gunning Fog 指数对网站进行了评估。所有网站中有 21.5% 获得了 HON 代码证书,50.5% 被认为是高质量的 (JAMA 得分≥3),25.8% 达到了推荐的可读性水平 (FKGL≤8)。只有三个网站的阅读水平达到了五六年级。商业和政府网站的 DISCERN 得分明显较低。商业网站的 Flesch 阅读舒适度得分和 FKGL 得分明显低于非营利网站。总之,目前的研究结果表明,精神分裂症在线信息的质量普遍可以接受,但可读性不足。网站创建者、医生和卫生当局应该更加关注精神分裂症在线信息的可读性,考虑到患者认知能力较差和疾病的独特性质。

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