Department of Obstetrics and Gynecology, St. Marianna University School of Medicine, Kanagawa, Japan.
Department of Pediatrics, Hokkaido University Hospital, Sapporo, Japan.
J Adolesc Young Adult Oncol. 2024 Jun;13(3):523-533. doi: 10.1089/jayao.2023.0017. Epub 2024 Feb 27.
This study's aim was to determine the actual status of transitional care for patients with pediatric cancer (PPCs) in Japan by surveying obstetricians/gynecologists. A questionnaire survey on transitional medicine was conducted in the form of an online questionnaire at 579 major training facilities nationwide, which were registered with the Japanese Society of Obstetrics and Gynecology. While 40% of the facilities had received referrals for PPCs, only 13% provided transitional care specifically for PPCs. The most common problems with referrals were related to "insufficient explanation." In addition, at facilities with no experience treating PPCs, many respondents commented that they did not know how to follow the progression of the disease. Regarding the necessity of obstetrics/gynecology visits for PPCs, more than half of the respondents at facilities with experience treating PPCs answered that such visits were "necessary"; only 1% answered that they were "unnecessary." On the other hand, 37% of the facilities that had no experience treating PPCs answered that it was "necessary," whereas 4% answered that it was "unnecessary." This survey of the actual status of transitional care between pediatrics and obstetrics/gynecology in Japan identified issues to be addressed for the spread of transitional care. The results suggest that, in the future, health care professionals need education to increase their knowledge, and that patient education that leads to patients' awareness of their own self-management is necessary.
本研究旨在通过调查妇产科医生来确定日本儿科癌症（PPCs）患者过渡护理的实际情况。在全国 579 家主要培训设施中，以日本妇产科协会注册的妇产科医生为对象，以在线问卷调查的形式进行了过渡医学问卷调查。虽然有 40%的医疗机构接收过 PPCs 的转诊，但只有 13%的医疗机构专门为 PPCs 提供过渡护理。转诊最常见的问题与“解释不足”有关。此外，在没有治疗 PPCs 经验的医疗机构中，许多受访者表示他们不知道如何跟踪疾病的进展。关于 PPCs 进行妇产科就诊的必要性，在有治疗 PPCs 经验的医疗机构中，超过一半的受访者回答说此类就诊“有必要”；只有 1%的人回答说“没必要”。另一方面，37%的没有治疗 PPCs 经验的医疗机构回答说“有必要”，而 4%的医疗机构回答说“没必要”。本研究对日本儿科和妇产科之间过渡护理的实际情况进行了调查，发现了需要解决的问题，以促进过渡护理的普及。研究结果表明，未来医疗保健专业人员需要接受教育以增加知识，并且需要进行能够使患者认识到自身自我管理的患者教育。
