卫生公平与患有复杂疾病的儿童/有特殊健康护理需求的儿童和青年：范围综述。

Health Equity and Children With Medical Complexity/Children and Youth With Special Health Care Needs: A Scoping Review.

出版信息

J Pediatr Health Care. 2024 Mar-Apr;38(2):210-218. doi: 10.1016/j.pedhc.2023.07.007.

DOI:10.1016/j.pedhc.2023.07.007

Abstract

A scoping review was conducted to systematically map the research on children with medical complexity and children and youth with special health care needs (CYSHCN) surrounding health equity. Fifteen articles were reviewed with focus on: access to care, quality of life and well-being, and insurance challenges/financing. Findings suggest CYSHCN require more and different types of services than those for typically developing children and youth, yet the current system is not ensuring access to these services. It is important to understand the unique perspectives, challenges, and opportunities of and for this population to better inform policy, research, and practice.

摘要

一项范围综述旨在系统地绘制有关医疗复杂性儿童和特殊健康护理需求儿童和青少年（CYSHCN）的健康公平研究图谱。综述了 15 篇文章，重点关注：获得医疗服务、生活质量和福祉，以及保险挑战/融资。研究结果表明，CYSHCN 需要比普通发育儿童和青少年更多和不同类型的服务，但当前的系统未能确保他们获得这些服务。了解这一人群的独特观点、挑战和机遇，对于更好地为政策、研究和实践提供信息非常重要。