Han Areum, Malone Laurie A, Lee Hee Yun, Gong Jiaqi, Henry Ryan, Zhu Xishi, Yuen Hon K
Department of Occupational Therapy, University of Alabama at Birmingham.
School of Social Work University of Alabama.
Health Psychol Res. 2024 Mar 1;12:93907. doi: 10.52965/001c.93907. eCollection 2024.
Ecological momentary assessment (EMA) as a real-time data collection method can provide insight into the daily experiences of family caregivers.
This systematic review aimed to synthesize studies involving EMA completed by family caregivers of adults with chronic conditions.
A systematic search was conducted within six databases for articles published from the inception of the database through September 2023. We extracted the characteristics of the included studies and data on EMA-specific methods to determine the quality of the included studies.
A total of 12 studies involving EMA completed by family caregivers of adults with chronic conditions were identified, with almost all studies focused on caregivers of persons with Alzheimer's or dementia-related conditions. The average compliance rate across the included studies was 75%, below the recommended rate. In addition, most of the included studies did not collect the family caregivers' daily activities and care contexts in their responses (i.e., affect, stress, well-being, care demand, and fatigue) to the EMA prompts.
This review showed that using EMA to collect information on family caregivers of adults with chronic health conditions appeared feasible and acceptable. However, the methodology or design of using EMA to collect caregiver information in this population is still preliminary. The limited number of existing studies that have used EMA to capture the daily experiences of family caregivers does not provide key information that could improve understanding of caregivers' emotional experiences and well-being in real-life situations. We identified gaps in the literature that warrant additional EMA studies for this population.
生态瞬时评估（EMA）作为一种实时数据收集方法，可以深入了解家庭照顾者的日常经历。
本系统评价旨在综合涉及慢性病成年患者家庭照顾者完成的EMA的研究。
在六个数据库中进行系统检索，查找从数据库建立到2023年9月发表的文章。我们提取了纳入研究的特征以及EMA特定方法的数据，以确定纳入研究的质量。
共识别出12项涉及慢性病成年患者家庭照顾者完成的EMA的研究，几乎所有研究都聚焦于阿尔茨海默病或痴呆相关疾病患者的照顾者。纳入研究的平均依从率为75%，低于推荐率。此外，大多数纳入研究在家庭照顾者对EMA提示的反应（即情感、压力、幸福感、护理需求和疲劳）中未收集其日常活动和护理背景信息。
本评价表明，使用EMA收集慢性病成年患者家庭照顾者的信息似乎是可行且可接受的。然而，使用EMA收集该人群照顾者信息的方法或设计仍处于初步阶段。现有的使用EMA捕捉家庭照顾者日常经历的研究数量有限，未提供有助于更好理解照顾者在现实生活中情感经历和幸福感的关键信息。我们确定了文献中的差距，需要针对该人群开展更多的EMA研究。
