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青少年与 1 型糖尿病:青少年适应 1 型糖尿病的扎根理论研究

Adolescents and type 1 diabetes: A grounded theory on adolescents' experiences of adaptation to type 1 diabetes.

机构信息

Psychiatric and Mental Health Nursing, Faculty of Nursing, Arab American University, Jenin, Palestine.

Community Health Nursing, Faculty of Nursing, Al-Zaytoonah University of Jordan, Amman, Jordan.

出版信息

J Pediatr Nurs. 2024 May-Jun;76:e159-e166. doi: 10.1016/j.pedn.2024.02.026. Epub 2024 Mar 7.

Abstract

PURPOSE

Type 1 diabetes influences adolescents' health status and therapeutic management. Adaptation for adolescents with type 1 diabetes is considered a significant issue for this cohort group and is based on many factors, including availability of resources, and family and community support. Thus, this study aimed to explore Palestinian adolescents' experiences of adaptation to type 1 diabetes in the West Bank.

DESIGN AND METHODS

A qualitative grounded theory approach was adopted. The purposive sample consisted of fourteen adolescents aged from 12 to 18 years and diagnosed with type 1 diabetes. The data were collected using semi-structured and face-to-face individual interviews during the period from March to June 2023. A constant comparative method was used to analyze data.

FINDINGS

The core category had emerged with categories and subcategories. There were three categories and ten subcategories including difficulties in the management of type 1 diabetes, for example, "insulin injections, dietary management, and control of HbA1c levels", burdens of type1 diabetes, for example, "burden regarding follow-up treatment, the burden of interaction and communication, emotional burden, and economic burden", and fears and worries of unexpected future life, for example, "worries about disease complications, worries regarding social relationships, and worries about marriage and parenthood".

CONCLUSION

Adolescents diagnosed with type 1 diabetes suffer from difficult experiences influencing their adaptation to this disease.

PRACTICE IMPLICATIONS

Counseling programs concerning self-care management for those adolescents need to be developed in addition to support programs. Health education programs are needed to develop their adaptation and coping skills to these experiences.

摘要

目的

1 型糖尿病会影响青少年的健康状况和治疗管理。适应 1 型糖尿病被认为是该人群的一个重要问题,这取决于许多因素,包括资源的可及性以及家庭和社区的支持。因此,本研究旨在探索巴勒斯坦青少年在西岸适应 1 型糖尿病的经验。

设计和方法

采用定性扎根理论方法。目的抽样包括 14 名年龄在 12 至 18 岁之间被诊断患有 1 型糖尿病的青少年。数据是在 2023 年 3 月至 6 月期间通过半结构式和面对面的个人访谈收集的。使用恒定性比较方法分析数据。

结果

核心类别与类别和子类别一起出现。有三个类别和十个子类别,包括 1 型糖尿病管理方面的困难,例如“胰岛素注射、饮食管理和 HbA1c 水平控制”,1 型糖尿病的负担,例如“随访治疗负担、互动和沟通负担、情绪负担和经济负担”,以及对未来生活意外的恐惧和担忧,例如“对疾病并发症的担忧、对社交关系的担忧以及对婚姻和生育的担忧”。

结论

被诊断患有 1 型糖尿病的青少年经历了影响他们适应这种疾病的困难经历。

实践意义

除了支持计划外,还需要为这些青少年制定有关自我护理管理的咨询计划。需要开展健康教育计划,以培养他们适应和应对这些经历的技能。

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