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[慢性阻塞性肺疾病患者的负担、应对策略及其与心理健康和幸福感的关联——一项混合方法研究]

[Experiences of Burden and Coping Strategies and their Associations with Mental Health and Well-Being in COPD - a Mixed Methods Study].

作者信息

Köbler Paul, Vogel Ralf T, Joraschky Peter, Söllner Wolfgang

机构信息

Universitätsklinik für Psychosomatische Medizin und Psychotherapie, Paracelsus Medizinische Privatuniversität - Nürnberg.

Praxis für Psychotherapie und Supervision, Ingolstadt.

出版信息

Psychother Psychosom Med Psychol. 2024 May;74(5):183-191. doi: 10.1055/a-2255-8695. Epub 2024 Mar 16.

Abstract

Understanding trigger and maintaining factors regarding psychiatric comorbidities in COPD is of great importance. In the presented mixed-methods study, qualitative interview data on burden experience and coping were related to psychiatric comorbidity (using PHQ-D) and quality of live (Positive Affect Negative Affect Schedulde, PANAS and Satisfaction with Life Scale, SWLS) and extended by the Freiburg Questionnaire on Coping with Illness (FKV-LIS). The two interview questions prompting narrative were 1.) "What is currently bothering you most?"; 2.) "How do you cope with your chronic disease in everyday life?" A total of 62 patients who were hospitalized due to COPD participated. The severity of physical impairment was assessed using GOLD stage and the Charlson Comorbidity Index (CCI). The interviews conducted were content analyzed and then quantified. The collected data were then compared between two groups with regard to mental distress. 13 themes of burden and 11 coping strategies were identified by content analysis. A total of 42 patients showed signs of mental distress, while 20 patients did not show signs of distress. There were no significant differences between the two groups in terms of sociodemographic characteristics and the severity of their physical symptoms. In the first interview question, the stressed group more frequently addressed issues related to death (35.7% versus 15.0%) and social stress (21.4% versus 0.0%). With respect to the second interview question, the nonstressed group was significantly more likely to mention strategies for consciously emphasizing positive emotions (70.0% versus 31.0%). In addition, higher scores on the FKV scales for depressive coping and trivialization and wishful thinking were evident in the stressed group. Quality of life and mental distress should be considered in clinical care for COPD. Interventions to influence illness perception and related coping styles are important, especially with regard to the development of a realistic and optimistic perspective on life and disease burden, as well as the inclusion of group and family therapeutic interventions.

摘要

了解慢性阻塞性肺疾病(COPD)中心理共病的触发因素和维持因素非常重要。在本混合方法研究中,关于负担体验和应对的定性访谈数据与心理共病(使用PHQ-D)和生活质量(积极情感消极情感量表,PANAS和生活满意度量表,SWLS)相关,并通过弗莱堡疾病应对问卷(FKV-LIS)进行扩展。促使叙述的两个访谈问题是:1.)“目前最困扰你的是什么?”;2.)“你在日常生活中如何应对慢性病?”共有62名因COPD住院的患者参与。使用GOLD分期和查尔森合并症指数(CCI)评估身体损伤的严重程度。对进行的访谈进行内容分析,然后进行量化。然后比较两组收集的数据在心理困扰方面的情况。通过内容分析确定了13个负担主题和11种应对策略。共有42名患者表现出心理困扰迹象,而20名患者未表现出困扰迹象。两组在社会人口统计学特征和身体症状严重程度方面无显著差异。在第一个访谈问题中,有压力的组更频繁地提及与死亡相关的问题(35.7%对15.0%)和社会压力(21.4%对0.0%)。关于第二个访谈问题,无压力的组更有可能提到有意识地强调积极情绪的策略(70.0%对31.0%)。此外,在有压力的组中,FKV量表上抑郁应对、轻视和一厢情愿的得分更高。在COPD的临床护理中应考虑生活质量和心理困扰。影响疾病认知和相关应对方式的干预措施很重要,特别是对于培养对生活和疾病负担的现实和乐观态度,以及纳入团体和家庭治疗干预措施。

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