Delvallée Marion, Garreau Romain, Termoz Anne, Ploteau Pierre-Marie, Derex Laurent, Schott Anne-Marie, Haesebaert Julie
Research on Healthcare Performance RESHAPE, INSERM U1290, Université Claude Bernard Lyon 1, Lyon, France.
Pharmacy Department, Hospices Civils de Lyon, Lyon, France.
Digit Health. 2024 Mar 21;10:20552076241240895. doi: 10.1177/20552076241240895. eCollection 2024 Jan-Dec.
After discharge home, stroke survivors and their informal caregivers face a significant lack of support and information which accentuates their psychosocial burden. Online resources might provide this support and address psychosocial needs, but existing online stroke programmes mainly target functional rehabilitation. We aimed to map the existing literature on online resources that have been evaluated in stroke rehabilitation and aimed at reducing psychosocial impact in stroke survivors and informal caregivers.
MEDLINE was searched (2010-2024) to identify studies investigating online resources targeting psychosocial health. Studies were selected and extracted independently by two reviewers. We described the content, use, and psychosocial impact of these interventions using a narrative approach.
Eleven studies were included in the review, reporting 10 online resources (two studies relating to the same resource). Online resources were heterogeneous: eight information/resources websites, one mobile app, and one forum. Five online resources were dedicated to stroke survivors, four to stroke survivors and their informal caregivers, and one to informal caregivers. Two randomized controlled trials reported a significant decrease in depressive symptoms associated with the use of online resources. Stroke survivors and informal caregivers find online resources useful and acceptable to address their psychosocial needs.
Few online stroke resources have been designed and evaluated to support post-stroke psychosocial rehabilitation. Further larger-scale research needs to study the impact of these interventions on psychosocial recovery over time.
出院回家后，中风幸存者及其非正式照护者面临着严重的支持和信息匮乏，这加剧了他们的心理社会负担。在线资源可能会提供这种支持并满足心理社会需求，但现有的在线中风项目主要针对功能康复。我们旨在梳理现有关于在中风康复中得到评估且旨在减轻中风幸存者和非正式照护者心理社会影响的在线资源的文献。
检索MEDLINE（2010 - 2024年）以识别调查针对心理社会健康的在线资源的研究。由两名评审员独立选择和提取研究。我们采用叙述性方法描述这些干预措施的内容、使用情况和心理社会影响。
该综述纳入了11项研究，报告了10种在线资源（两项研究涉及同一资源）。在线资源种类繁多：8个信息/资源网站、1个移动应用程序和1个论坛。5种在线资源专门针对中风幸存者，4种针对中风幸存者及其非正式照护者，1种针对非正式照护者。两项随机对照试验报告称，使用在线资源后抑郁症状显著减轻。中风幸存者和非正式照护者发现在线资源对满足他们的心理社会需求有用且可接受。
很少有在线中风资源被设计和评估用于支持中风后的心理社会康复。需要进一步开展更大规模的研究来探讨这些干预措施对心理社会恢复的长期影响。
