Department of Obstetrics and Gynaecology, Amsterdam UMC, Location University of Amsterdam, Meibergdreef 9, Amsterdam, the Netherlands.
Department of Gynaecological Oncology, Cancer Centre Amsterdam, Amsterdam, the Netherlands.
Support Care Cancer. 2024 Mar 26;32(4):247. doi: 10.1007/s00520-024-08436-z.
The purpose of this study was to explore ovarian cancer patients' preferences regarding follow-up care and, in particular, the use of patient-reported outcome measures (PROMs) as an approach to personalise follow-up care.
Between May and June 2021, semi-structured interviews were conducted with ovarian cancer patients, who had finished their primary treatment at least 6 months prior and were receiving follow-up care at our centre. Interviews were transcribed verbatim and analysed using an inductive thematic approach. A thematic flow chart was created describing interacting themes.
Seventeen patients were interviewed, of which 11 were familiar with PROMs. Two key themes emerged from the data: the need for reassurance and the wish for personalised care. A follow-up scheme using PROMs was identified as a separate theme with the potential to personalise care. Several barriers and facilitators of PROMs were mentioned.
Ovarian cancer patients have a desire for personalised follow-up care and seek reassurance. PROMs may be able to support both of these needs. Future research is needed to determine the most effective, patient-centred way to implement them.
By understanding what patients' preferences are regarding follow-up care, more initiatives can be set up to personalise follow-up care, through which patient anxiety and dissatisfaction can be reduced.
本研究旨在探讨卵巢癌患者对随访护理的偏好，特别是使用患者报告结局测量（PROMs）作为个性化随访护理的一种方法。
2021 年 5 月至 6 月，对至少在我们中心完成初始治疗 6 个月且正在接受随访护理的卵巢癌患者进行了半结构式访谈。访谈内容逐字转录，并采用归纳主题分析方法进行分析。创建了一个主题流程图，描述了相互作用的主题。
共对 17 名患者进行了访谈，其中 11 名患者熟悉 PROMs。从数据中得出了两个关键主题：需要得到保证和希望得到个性化护理。使用 PROMs 的随访方案被确定为一个潜在的个性化护理主题。还提到了 PROMs 的一些障碍和促进因素。
卵巢癌患者希望得到个性化的随访护理并寻求保证。PROMs 可能能够满足这两种需求。需要进一步研究确定实施 PROMs 的最有效、以患者为中心的方法。
通过了解患者对随访护理的偏好，可以开展更多的举措来个性化随访护理，从而减轻患者的焦虑和不满。
