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脊髓损伤患者的生活质量:评估与康复

The Quality of Life in Patients with Spinal Cord Injury: Assessment and Rehabilitation.

作者信息

Cardile Davide, Calderone Andrea, De Luca Rosaria, Corallo Francesco, Quartarone Angelo, Calabrò Rocco Salvatore

机构信息

IRCCS Centro Neurolesi Bonino Pulejo, 98124 Messina, Italy.

出版信息

J Clin Med. 2024 Mar 21;13(6):1820. doi: 10.3390/jcm13061820.

Abstract

Spinal Cord Injury (SCI) develops when the spinal cord is damaged and leads to partial or complete loss of motor and/or sensory function, usually below the level of injury. Medical advances in the last few decades have enabled SCI patients to survive after their initial injury and extend their life expectancy. As a result, the need for outcome measures to assess health and Quality of Life (QoL) after rehabilitation is increasing. All QoL assessment measures include implicit or explicit reactions and evaluations of a person's life characteristics. This review aims to investigate QoL and its assessment in patients with SCI and how the instruments that are used may influence rehabilitation. Studies were identified from an online search of PubMed, Cochrane Library, and Scopus databases. Studies published between 2013 and 2023 were selected. This review has been registered on OSF (n) 892NY. We found that different psychological and physical aspects can positively or negatively influence the QoL of SCI patients, and the measurement of this aspect, despite the number of tools, is limited due to the lack of a universal definition of this theme and the greater prevalence of quantitative rather than qualitative tools. This review has demonstrated that clinicians and psychologists involved in SCI rehabilitation should consider tools that use high-quality standardized outcome measures to detect and compare potential differences and outcomes of interventions related to HRQoL and their relationship with the personality and functional status of the patient.

摘要

脊髓损伤(SCI)是指脊髓受损后导致运动和/或感觉功能部分或完全丧失,通常是在损伤平面以下。过去几十年的医学进步使脊髓损伤患者在初次受伤后能够存活并延长了预期寿命。因此,康复后评估健康状况和生活质量(QoL)的结果指标需求日益增加。所有生活质量评估指标都包括对一个人生活特征的隐性或显性反应及评价。本综述旨在研究脊髓损伤患者的生活质量及其评估,以及所使用的工具如何影响康复。通过在线检索PubMed、Cochrane图书馆和Scopus数据库来识别研究。选取了2013年至2023年发表的研究。本综述已在OSF(n)892NY上注册。我们发现,不同的心理和生理方面会对脊髓损伤患者的生活质量产生积极或消极影响,尽管有多种工具来衡量这一方面,但由于缺乏对该主题的统一界定,且定量工具比定性工具更为普遍,这方面的测量仍存在局限性。本综述表明,参与脊髓损伤康复的临床医生和心理学家应考虑使用高质量标准化结果指标的工具,以检测和比较与健康相关生活质量干预措施的潜在差异和结果,以及它们与患者个性和功能状态的关系。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/07a9/10971730/6cf75028bc4f/jcm-13-01820-g001.jpg

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