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解决沙特阿拉伯生长激素治疗的可及性和支付方障碍:沙特儿内分泌学工作组的共识声明。

Tackling access and payer barriers for growth hormone therapy in Saudi Arabia: a consensus statement for the Saudi Working Group for Pediatric Endocrinology.

机构信息

Department of Pediatric Endocrinology, 4917 King Abdulaziz Medical City/King Saud bin Abdulaziz University for Health Sciences/King Abdullah International Medical Research Center , Jeddah, Saudi Arabia.

Andalusia Medical Groups, Jeddah, Saudi Arabia.

出版信息

J Pediatr Endocrinol Metab. 2024 Mar 29;37(5):387-399. doi: 10.1515/jpem-2024-0021. Print 2024 May 27.

Abstract

Prompt diagnosis and early treatment are key goals to optimize the outcomes of children with growth hormone deficiency (GHD) and attain the genetically expected adult height. Nonetheless, several barriers can hinder prompt diagnosis and treatment of GHD, including payer-related issues. In Saudi Arabia, moderate-to-severe short stature was reported in 13.1 and 11.7 % of healthy boys and girls, respectively. Several access and payer barriers can face pediatric endocrinologists during the diagnosis and treatment of GHD in Saudi Arabia. Insurance coverage policies can restrict access to diagnostic tests for GHD and recombinant human growth hormone (rhGH) due to their high costs and lack of gold-standard criteria. Some insurance policies may limit the duration of treatment with rhGH or the amount of medication covered per month. This consensus article gathered the insights of pediatric endocrinologists from Saudi Arabia to reflect the access and payer barriers to the diagnostic tests and treatment options of children with short stature. We also discussed the current payer-related challenges endocrinologists face during the investigations of children with short stature. The consensus identified potential strategies to overcome these challenges and optimize patient management.

摘要

及时诊断和早期治疗是优化生长激素缺乏症(GHD)患儿治疗效果、达到遗传预期成人身高的关键目标。然而,一些障碍可能会阻碍 GHD 的及时诊断和治疗,包括支付方相关问题。在沙特阿拉伯,分别有 13.1%和 11.7%的健康男童和女童存在中重度身材矮小。在沙特阿拉伯,儿科内分泌医生在诊断和治疗 GHD 时可能会面临一些获得治疗途径和支付方的障碍。由于诊断 GHD 和重组人生长激素(rhGH)的检测费用较高,且缺乏金标准,保险覆盖政策可能会限制这些检测的获得。一些保险政策可能会限制 rhGH 治疗的持续时间或每月覆盖的药物剂量。本文汇集了来自沙特阿拉伯的儿科内分泌医生的意见,反映了矮小儿童诊断检测和治疗方案的获得途径和支付方障碍。我们还讨论了内分泌医生在矮小儿童调查中面临的当前支付方相关挑战。该共识确定了克服这些挑战和优化患者管理的潜在策略。

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