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利用疾病表象的常识模型探索英国个体对偏头痛及其管理的体验和看法。

Using the common-sense model of illness representations to explore individuals' experiences and perceptions of migraine and its management in the United Kingdom.

机构信息

Applied Psychology, Cardiff School of Sport & Health Sciences, Cardiff Metropolitan University, Llandaff Campus, Cardiff, Wales, CF5 2YB, United Kingdom.

出版信息

Int J Pharm Pract. 2024 May 7;32(3):223-228. doi: 10.1093/ijpp/riae014.

Abstract

OBJECTIVES

Migraine is considered a chronic health condition that impacts both quality of life and psychological wellbeing. People with migraines use a range of management strategies, which include pharmacological and non-pharmacological treatments. The aim of this study was to explore individuals' experiences and perceptions of migraines and its treatment using the Common-Sense Model (CSM) of Illness Representations.

METHODS

Semi-structured, one-to-one interviews were conducted with eleven individuals with a history of migraine to explore their experiences and perceptions of migraine and its treatment. Participants were recruited from across the United Kingdom via convenience sampling using social media advertisement. Interviews were recorded, transcribed verbatim, and qualitative data were analysed using theoretical framework analysis using the CSM.

RESULTS

The three dimensions of the CSM were mapped on to the qualitative data. These were: (i) Cognitive representations of migraine, within five domains: (a) identity of migraine, (b) perceived causes, (c) perceived timeline, (d) perceived control/cure, and (e) perceived consequences; (ii) Emotional representations of migraine relating to (a) migraine specific emotions and (b) emotional representation of the impact of migraine; and (iii) Coping/self-management behaviours, namely (a) self-medicating behaviours and (b) care-seeking behaviours. No incongruous data were found; therefore, no further thematic analysis was required.

CONCLUSION

This is the first study to apply the CSM to migraine for framework analysis of qualitative data in this way. The findings illustrate the emotional impact of migraine and the range of illness perceptions associated with appropriate self-management. The data will be used to design a questionnaire for quantitative studies to investigate the extent to which these perceptions are generalizable to the wider population of people who experience migraines.

摘要

目的

偏头痛被认为是一种影响生活质量和心理健康的慢性健康状况。偏头痛患者使用多种管理策略,包括药物和非药物治疗。本研究旨在使用疾病认知模型(CSM)探讨个体对偏头痛及其治疗的体验和认知。

方法

通过社交媒体广告,采用方便抽样法从英国各地招募了 11 名有偏头痛病史的参与者进行一对一的半结构式访谈,以探讨他们对偏头痛及其治疗的体验和认知。访谈以录音形式记录,并逐字转录,使用 CSM 的理论框架分析对定性数据进行分析。

结果

CSM 的三个维度映射到定性数据上。这些维度是:(i)偏头痛的认知表现,分为五个领域:(a)偏头痛的身份,(b)感知原因,(c)感知时间线,(d)感知控制/治愈,和(e)感知后果;(ii)偏头痛的情绪表现,涉及(a)偏头痛特定情绪和(b)偏头痛影响的情绪表现;(iii)应对/自我管理行为,即(a)自我治疗行为和(b)寻求医疗行为。没有发现不一致的数据;因此,不需要进一步的主题分析。

结论

这是第一项应用 CSM 对偏头痛进行框架分析的研究,以这种方式对定性数据进行分析。研究结果说明了偏头痛的情绪影响以及与适当自我管理相关的各种疾病认知。这些数据将用于设计问卷进行定量研究,以调查这些认知在多大程度上适用于更广泛的偏头痛患者人群。

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