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脊髓裂患者过渡护理的障碍。

Barriers to Transitional Care in Spina Bifida.

机构信息

Division of Urology, Children's Hospital Colorado, 13123 East 16th Avenue, Box 323, Aurora, CO 80045, USA.

Division of Urology, Children's Hospital Colorado, 13123 East 16th Avenue, Box 323, Aurora, CO 80045, USA.

出版信息

Urol Clin North Am. 2024 May;51(2):187-196. doi: 10.1016/j.ucl.2024.01.006. Epub 2024 Feb 29.

Abstract

The health care needs children with spina bifida evolve over their lifetime; continued, regular contact with appropraitely trained, multidisciplinary providers is crucial to a patient's health and quality of life. Substantial research has been conducted to improve the transition process starting at an early age; however, there continue to be strong barriers to successful transition. This article reviews key aspects of the care of patients with spina bifida, the impact of inadequate transition to adult care, barriers to transition, and offers a potential vision for the future.

摘要

患有脊柱裂的儿童的医疗需求会伴随其一生发展;与经过适当培训的多学科提供者保持持续、定期的联系,对患者的健康和生活质量至关重要。已经进行了大量研究来改善从早期开始的过渡过程;然而,成功过渡仍然存在着很大的障碍。本文回顾了脊柱裂患者护理的关键方面、向成人护理过渡不足的影响、过渡障碍,并为未来提供了一个潜在的愿景。

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