DeBakey Heart & Vascular Center, Houston Methodist Hospital, 6550 Fannin St, Smith Tower Suite 1901, Houston, TX, 77030, USA.
The University of North Texas Health Science Center, Fort Worth, TX, USA.
Curr Cardiol Rep. 2024 Jun;26(6):539-544. doi: 10.1007/s11886-024-02059-w. Epub 2024 Apr 13.
The study of adults with congenital heart disease (ACHD) is a rapidly growing field; however, more research is needed on the disparities affecting outcomes. With advances in medicine, a high percentage of patients with congenital heart disease (CHD) are advancing to adulthood, leading to an increase in the number of ACHD. This creates a pressing need to evaluate the factors, specifically the social determinants of health (SDOH) contributing to the outcomes for ACHD.
A myriad of factors, including, but not limited to, race, education, and socioeconomic status, have been shown to affect ACHD outcomes. Existing data from hospitalizations, mortality and morbidity, advanced care planning, patient and physician awareness, financial factors, and education alongside race and socioeconomic status present differences in ACHD outcomes. With SDOH having a significant impact on ACHD subspecialty care outcomes, ACHD centers need to be constantly adapting and innovating, incorporating SDOH into patient management, and providing additional healthcare resources to manage the care of ACHD.
成人先天性心脏病（ACHD）的研究是一个快速发展的领域；然而，仍需要更多关于影响结局的差异的研究。随着医学的进步，越来越多的先天性心脏病（CHD）患者进入成年期，导致 ACHD 患者数量增加。这就迫切需要评估导致 ACHD 结局的因素，特别是健康的社会决定因素（SDOH）。
大量因素，包括但不限于种族、教育和社会经济地位，已被证明会影响 ACHD 的结局。现有的来自住院、死亡率和发病率、先进的护理计划、患者和医生意识、财务因素以及教育以及种族和社会经济地位的数据，在 ACHD 的结局方面存在差异。由于 SDOH 对 ACHD 亚专科护理结局有重大影响，ACHD 中心需要不断调整和创新，将 SDOH 纳入患者管理，并提供额外的医疗资源来管理 ACHD 的护理。
