Velayudhan Anoop, Seshadri Suresh, Jagadeesan Sujatha, Saravanan Jayanti, Yadav Rajesh, Yeung Lorraine F
Epidemic Intelligence Service India Programme-National Centre for Disease Control, New Delhi, India.
Fetal Care Research Foundation, Chennai, Tamil Nadu, India.
Int J Community Med Public Health. 2021;8(11):5484-5488. doi: 10.18203/2394-6040.ijcmph20214293.
The Birth Defects Registry of India-Chennai (BDRI-C) was created in 2001 to monitor birth defects and provide timely referrals. Using established guidelines to evaluate surveillance systems, we examined the following attributes of BDRI-C to help strengthen the registry: simplicity, flexibility, data quality, representativeness, acceptability, timeliness, and stability. We reviewed BDRI-C documents, including reporting forms; interviewed key informants; and calculated data completeness, coverage, and reporting time. BDRI-C captured 14% of the births in Chennai April 2013 - March 2014. About 7% of institutions in Chennai registered in BDRI-C, and of those registered, 37% provided data in 2013. Median reporting time was 44 days after birth in 2013. BDRI-C is a useful, simple, flexible, and timely passive birth defects surveillance system; however, improvements can be made to ensure BDRI-C is representative of Chennai, data processing and quality checks are on-going, and the system is acceptable for member institutions and stable.
印度钦奈出生缺陷登记处（BDRI-C）于2001年设立，旨在监测出生缺陷并提供及时转诊。我们依据既定的监测系统评估指南，对BDRI-C的以下特性进行了审查，以助力强化该登记处：简易性、灵活性、数据质量、代表性、可接受性、及时性及稳定性。我们查阅了BDRI-C的文档，包括报告表格；访谈了关键信息提供者；并计算了数据完整性、覆盖率及报告时间。BDRI-C记录了钦奈2013年4月至2014年3月期间14%的出生情况。钦奈约7%的机构在BDRI-C进行了登记，其中登记的机构在2013年有37%提供了数据。2013年的中位报告时间为出生后44天。BDRI-C是一个实用、简易、灵活且及时的被动式出生缺陷监测系统；然而，仍可进行改进，以确保BDRI-C能代表钦奈，数据处理和质量检查持续进行，且该系统为成员机构所接受并保持稳定。
