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口吃负担与成人生活心理社会方面的关系。

The Association Between Stuttering Burden and Psychosocial Aspects of Life in Adults.

机构信息

Language and Genetics Department, Max Planck Institute for Psycholinguistics, Nijmegen, the Netherlands.

Department of Otorhinolaryngology and Head and Neck Surgery, Erasmus University Medical Center, Rotterdam, the Netherlands.

出版信息

J Speech Lang Hear Res. 2024 May 7;67(5):1385-1399. doi: 10.1044/2024_JSLHR-23-00562. Epub 2024 Apr 16.

Abstract

PURPOSE

Stuttering is a speech condition that can have a major impact on a person's quality of life. This descriptive study aimed to identify subgroups of people who stutter (PWS) based on stuttering burden and to investigate differences between these subgroups on psychosocial aspects of life.

METHOD

The study included 618 adult participants who stutter. They completed a detailed survey examining stuttering symptomatology, impact of stuttering on anxiety, education and employment, experience of stuttering, and levels of depression, anxiety, and stress. A two-step cluster analytic procedure was performed to identify subgroups of PWS, based on self-report of stuttering frequency, severity, affect, and anxiety, four measures that together inform about stuttering burden.

RESULTS

We identified a high- ( = 230) and a low-burden subgroup ( = 372). The high-burden subgroup reported a significantly higher impact of stuttering on education and employment, and higher levels of general depression, anxiety, stress, and overall impact of stuttering. These participants also reported that they trialed more different stuttering therapies than those with lower burden.

CONCLUSIONS

Our results emphasize the need to be attentive to the diverse experiences and needs of PWS, rather than treating them as a homogeneous group. Our findings also stress the importance of personalized therapeutic strategies for individuals with stuttering, considering all aspects that could influence their stuttering burden. People with high-burden stuttering might, for example, have a higher need for psychological therapy to reduce stuttering-related anxiety. People with less emotional reactions but severe speech distortions may also have a moderate to high burden, but they may have a higher need for speech techniques to communicate with more ease. Future research should give more insights into the therapeutic needs of people highly burdened by their stuttering.

SUPPLEMENTAL MATERIAL

https://doi.org/10.23641/asha.25582980.

摘要

目的

口吃是一种会严重影响个人生活质量的言语障碍。本描述性研究旨在根据口吃负担对口吃者(PWS)进行分组,并调查这些亚组在生活的社会心理方面的差异。

方法

该研究纳入了 618 名成年口吃者。他们完成了一项详细的调查,调查内容包括口吃症状、口吃对口吃者焦虑、教育和就业的影响、口吃经历以及抑郁、焦虑和压力水平。采用两步聚类分析程序,根据口吃频率、严重程度、影响、焦虑的自我报告,这四个指标共同反映口吃负担,对口吃者进行分组。

结果

我们确定了一个高负担亚组(n=230)和一个低负担亚组(n=372)。高负担亚组报告口吃对口吃者教育和就业的影响更大,且普遍抑郁、焦虑、压力和口吃总影响的水平更高。这些参与者还报告称,他们尝试了更多不同的口吃疗法,而不是那些负担较低的人。

结论

我们的研究结果强调了需要关注口吃者的不同经历和需求,而不是将他们视为一个同质的群体。我们的研究结果还强调了为口吃者制定个性化治疗策略的重要性,考虑到所有可能影响他们的口吃负担的因素。例如,负担较重的口吃者可能对口吃相关焦虑的心理治疗需求较高。那些情绪反应较轻但言语障碍严重的人也可能负担较重,但他们可能对口吃者的言语技术有较高的需求,以更轻松地交流。未来的研究应该更深入地了解那些对口吃负担较重的人的治疗需求。

补充材料

https://doi.org/10.23641/asha.25582980.

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