Deakin University, 221 Burwood Highway, Burwood, VIC, 3125, Australia.
Royal Adelaide Hospital, Central Adelaide Local Health Network (CALHN), Port Road, Adelaide, SA, 5000, Australia.
Dig Dis Sci. 2024 Jun;69(6):1979-1989. doi: 10.1007/s10620-024-08377-x. Epub 2024 Apr 18.
There is a need to improve psychological care for people with Inflammatory Bowel Diseases (IBD), noting the high psychosocial burden of disease.
This study qualitatively explored the views of people living with IBD to help inform future co-design of services that better meet the psychological needs of consumers.
Adults with IBD were recruited to attend virtual focus groups to discuss what they want most in an IBD-specific psychological service. The discussions were recorded and transcribed, and data were analyzed using conventional qualitative content analysis. Draft results were summarized midway and reviewed by remaining focus groups and a final expert consumer. A quantitative dataset was created of comment frequencies.
Thirty-one participants took part in the study: 10 focus groups were held with an average of three participants per group. The analysis identified 254 codes, 38 sub-categories and six categories. Five main categories were identified for an IBD-specific psychological service: People-Centered Healthcare (commented on by 90% of participants), Education and Preparation (83%), Social Connection (83%), Psychological Input (93%), and Accessible Services (97%). Results were summarized in a set of proposed clinical guidelines.
The findings of this study identify important insights from people living with IBD regarding priorities for psychological services. IBD services should focus on improving education, addressing social connection, and integrating psychological input, as well as becoming more people-centered and accessible. It is hoped that IBD services consult the proposed clinical guidelines to inform co-designed service improvements.
有必要改善炎症性肠病（IBD）患者的心理关怀，因为该病会给患者带来沉重的心理负担。
本研究通过定性探讨 IBD 患者的观点，以期为未来更好地满足消费者的心理需求而共同设计服务提供参考。
招募患有 IBD 的成年人参加虚拟焦点小组，讨论他们在 IBD 特定心理服务中最需要什么。讨论内容被记录并转录，使用常规定性内容分析对数据进行分析。在总结中途结果并由其余焦点小组和一名最终的专家消费者进行审查后，创建了一个评论频率的定量数据集。
31 名参与者参加了这项研究：共进行了 10 次焦点小组讨论，每组平均有 3 名参与者。分析确定了 254 个代码、38 个子类别和 6 个类别。确定了 IBD 特定心理服务的五个主要类别：以患者为中心的医疗保健（90%的参与者对此发表了评论）、教育和准备（83%）、社会联系（83%）、心理投入（93%）和可及性服务（97%）。研究结果总结为一组拟议的临床指南。
本研究从患有 IBD 的患者那里确定了有关心理服务优先事项的重要见解。IBD 服务应重点改善教育、解决社会联系问题，并整合心理投入，同时更加以患者为中心和便于使用。希望 IBD 服务机构参考拟议的临床指南，为共同设计服务改进提供信息。
