Department of Behavioural Medicine, Institute of Basic Medical Sciences, Faculty of Medicine, University of Oslo, Blindern, Oslo, Norway.
Department of Paediatric Haematology and Oncology, Division of Paediatric and Adolescent Medicine, Oslo University Hospital, Rikshospitalet, Nydalen, Oslo, Norway.
J Pediatr Hematol Oncol Nurs. 2024 May-Jun;41(3):172-187. doi: 10.1177/27527530231214528. Epub 2024 Apr 24.
Transitioning from active cancer treatment to survivorship represents a vulnerable yet underresearched phase for adolescents and their families. Knowledge of their support needs, the challenges they experience, and how they manage them are useful to inform tailored follow-up care. Thus, we aimed to explore their transition experiences. We interviewed 15 adolescents (12-19 years) who had transitioned off of treatment 1 to 47 months prior at Oslo University Hospital's Department of Paediatric Haematology and Oncology and their biological parents ( = 16). The interviews were analyzed using inductive, reflexive thematic analysis inspired by Braun and Clarke. NVivo-12 was used for data management. Four main themes were identified: (a) consequences of cancer beyond transition, (b) transition back to normalcy, (c) survivorship competence, and (d) changes in roles and relationships. The families described happiness and relief but also said that the lingering effects of cancer treatment had a profound impact on day-to-day living. The adolescents expressed closeness with and dependency on their parents, and they perceived family and friends as essential for social readjustment. Although adolescent survivors and their parents described a wide variety of strategies for returning to "normalcy," their perspectives also illustrate ongoing psychosocial and educational support needs that changed over time. Our findings indicate a need for improved preparation for and support through the transition. Nurses are well positioned to provide continuous and structured transition support tailored to the needs of the individual survivors and their families.
从癌症的积极治疗过渡到生存阶段，是青少年及其家庭一个脆弱但研究不足的阶段。了解他们的支持需求、他们所经历的挑战以及他们如何应对这些挑战，对于提供量身定制的后续护理是有用的。因此，我们旨在探索他们的过渡经历。我们采访了 15 名青少年（12-19 岁），他们在奥斯陆大学医院儿科血液学和肿瘤学系接受治疗后，1 至 47 个月前已经完成了治疗，还采访了他们的生物父母（ = 16）。采访采用了基于 Braun 和 Clarke 的启发式、反思性主题分析方法进行分析。使用 NVivo-12 进行数据管理。确定了四个主要主题：（a）癌症治疗结束后的后果，（b）恢复正常，（c）生存能力，以及（d）角色和关系的变化。这些家庭描述了快乐和宽慰，但也表示癌症治疗的遗留影响对日常生活有深远的影响。青少年表示与父母亲近并依赖父母，他们认为家庭和朋友对于社会调整至关重要。尽管青少年幸存者及其父母描述了各种各样的恢复“正常”的策略，但他们的观点也说明了随着时间的推移，持续存在的心理社会和教育支持需求发生了变化。我们的研究结果表明，需要改善过渡时期的准备和支持。护士非常适合提供针对个体幸存者及其家庭需求的连续和结构化的过渡支持。
