在 COVID-19 封锁期间，有支持性住宿的 IDD 成年人：家庭的观点。
Adults With IDD in Supported Accommodation During COVID-19 Lockdown: The Families' Perspective.
机构信息
Carmit-Noa Shpigelman, Department of Community Mental Health, University of Haifa, Israel.
Tal Araten-Bergman, Social Work and Social Policy, School of Allied Health, Human Services and Sport, and Living with Disability Research Centre, La Trobe University, Melbourne, Australia.
出版信息
Am J Intellect Dev Disabil. 2024 May 1;129(3):215-230. doi: 10.1352/1944-7558-129.3.215.
The present study aims to understand and describe family caregivers' perceptions and experiences regarding contact and relationships with their adult relatives with intellectual and developmental disabilities (IDD) living in supported accommodation during the COVID-19 lockdown. A qualitative phenomenological approach was applied in which 19 Israeli family caregivers (parents and siblings) were interviewed. Inductive thematic analysis revealed themes at the microsystem level (the resident, the caregiver, and their relationship), and at the mesosystem level (the caregivers' interactions with service providers and other residents' families). The findings highlight the pivotal role of family caregivers in times of uncertainty and the need to develop explicit policies and mechanisms to facilitate family engagement in the residents' lives.
本研究旨在了解和描述家庭照顾者在 COVID-19 封锁期间对其居住在支持性住宿环境中的成年智障和发育障碍（IDD）亲属的接触和关系的看法和体验。采用定性现象学方法，对 19 名以色列家庭照顾者（父母和兄弟姐妹）进行了访谈。归纳主题分析揭示了微系统层面（居住者、照顾者及其关系）和中系统层面（照顾者与服务提供者的互动以及其他居住者家庭）的主题。研究结果强调了家庭照顾者在不确定时期的关键作用，需要制定明确的政策和机制，以促进家庭参与居住者的生活。
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