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智力和发育障碍者对西班牙 COVID-19 的认知:一项横断面研究。

Perceptions of people with intellectual and developmental disabilities about COVID-19 in Spain: a cross-sectional study.

机构信息

Institute for Community Inclusion (INICO), Department of Personality, Assessment and Psychological Treatments, Faculty of Psychology, University of Salamanca, Salamanca, Spain.

出版信息

J Intellect Disabil Res. 2021 May;65(5):381-396. doi: 10.1111/jir.12821. Epub 2021 Feb 8.

Abstract

BACKGROUND

As the world battles COVID-19, there is a need to study the perceptions of people with intellectual and developmental disabilities (IDD) about the effects of the pandemic and associated lockdown on their lives. This work explores the perceptions of Spaniards with IDD during the lockdown with respect to four topics: access to information, emotional experiences, effects on living conditions and access to support.

METHODS

The topics were explored using a subset of 16 closed-ended questions from an online survey. In total, 582 participants with IDD completed the survey. The frequencies and percentages of responses to the questions were calculated, and chi-square tests performed to explore the relationship between participants' sociodemographic characteristics and responses. Given that people differed in the way in which they completed the survey, the relationship between participants' responses and completion method was also analysed.

RESULTS

Participants reported that the pandemic and subsequent lockdown have had a deleterious effect on their emotional well-being (around 60.0% of participants) and occupations (48.0% of students and 72.7% of workers). Although access to information and support was reportedly good overall, being under the age of 21 years and studying were associated with perceptions reflecting poorer access to information (V = .20 and V = .13, respectively) and well-being support (V = .15 and V = .13, respectively). Being supported by a third party to complete the survey was consistently related to perceptions of worse outcomes.

CONCLUSIONS

The study yielded data on the perceptions of people with IDD regarding the effects that COVID-19 and the subsequent lockdown have had on their lives. Suggestions on how to overcome the difficulties reported and future lines of research are discussed.

摘要

背景

随着世界各国与 COVID-19 作斗争,有必要研究智力和发育障碍(IDD)患者对大流行及其相关封锁对其生活影响的看法。这项工作探讨了西班牙 IDD 患者在封锁期间对四个主题的看法:信息获取、情绪体验、对生活条件的影响和获得支持的机会。

方法

使用在线调查中的 16 个封闭式问题的子集探讨了这些主题。共有 582 名 IDD 患者完成了调查。计算了问题回答的频率和百分比,并进行了卡方检验以探讨参与者的社会人口统计学特征与回答之间的关系。由于参与者在完成调查的方式上存在差异,还分析了参与者的回答与完成方法之间的关系。

结果

参与者报告称,大流行和随后的封锁对他们的情绪健康(约 60.0%的参与者)和职业(48.0%的学生和 72.7%的工人)产生了有害影响。尽管总体上获得信息和支持的渠道良好,但年龄在 21 岁以下和正在学习的人对信息(V=0.20 和 V=0.13,分别)和幸福支持(V=0.15 和 V=0.13,分别)的获取较差的看法。由第三方支持完成调查与感知到更糟糕的结果始终相关。

结论

该研究提供了关于 IDD 患者对 COVID-19 及其随后的封锁对其生活影响的看法的数据。讨论了如何克服报告的困难和未来研究的方向。

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