Blackler Liz, Scharf Amy E, Matsoukas Konstantina, Colletti Michelle, Voigt Louis P
Ethics Committee, Memorial Sloan Kettering Cancer Center, New York, New York, USA
Ethics Committee, Memorial Sloan Kettering Cancer Center, New York, New York, USA.
BMJ Health Care Inform. 2024 Apr 27;31(1):e100988. doi: 10.1136/bmjhci-2023-100988.
Memorial Sloan Kettering Cancer Center (MSK) sought to empower patients and caregivers to be more proactive in requesting ethics consultations.
Functionality was developed on MSK's electronic patient portal that allowed patients and/or caregivers to request ethics consultations. The Ethics Consultation Service (ECS) responded to all requests, which were documented and analysed.
Of the 74 requests made through the portal, only one fell under the purview of the ECS. The others were primarily requests for assistance with coordinating clinical care, hospital resources or frustrations with the hospital or clinical team.
To better empower patients and caregivers to engage Ethics, healthcare organisations and ECSs must first provide them with accessible, understandable and iterative educational resources.
After 19.5 months, the 'Request Ethics Consultation' functionality on the patient portal was suspended. Developing resources on the role of Ethics for our patients and caregivers remains a priority.
纪念斯隆凯特琳癌症中心（MSK）试图让患者及护理人员在请求伦理咨询时更加主动。
在MSK的电子患者门户网站上开发了一项功能，使患者和/或护理人员能够请求伦理咨询。伦理咨询服务（ECS）对所有请求做出回应，并进行记录和分析。
通过该门户网站提出的74项请求中，只有一项属于ECS的职权范围。其他请求主要是关于协调临床护理、医院资源的协助，或对医院或临床团队感到沮丧。
为了更好地让患者和护理人员参与伦理事务，医疗保健组织和ECS必须首先为他们提供易于获取、易于理解且反复更新的教育资源。
19.5个月后，患者门户网站上的“请求伦理咨询”功能暂停。为我们的患者和护理人员开发关于伦理角色的资源仍然是一个优先事项。
