Ligtenberg Wieke, Stolper Margreet, Molewijk Bert
Department Ethics, Law & Humanities, Amsterdam UMC, Amsterdam, The Netherlands.
Clinical Ethics Support, Center for Medical Ethics, Oslo, Norway.
BMC Med Ethics. 2024 May 3;25(1):49. doi: 10.1186/s12910-024-01039-7.
Confidentiality is one of the central preconditions for clinical ethics support (CES). CES cases which generate moral questions for CES staff concerning (breaching) confidentiality of what has been discussed during CES can cause moral challenges. Currently, there seems to be no clear policy or guidance regarding how CES staff can or should deal with these moral challenges related to (not) breaching confidentiality within CES. Moral case deliberation is a specific kind of CES.
Based on experiences and research into MCD facilitators' needs for ethics support in this regard, we jointly developed an ethics support tool for MCD facilitators: the Confidentiality Compass. This paper describes the iterative developmental process, including our theoretical viewpoints and reflections on characteristics of CES tools in general.
The content and goals of the ethics support tool, which contains four elements, is described. Part A is about providing information on the concept of confidentiality in MCD, part B is a moral compass with reflective questions, part C focuses on courses of action for careful handling of moral challenges related to confidentiality. Part D contains general lessons, best practices and tips for dealing with confidentiality in future cases.
This paper concludes with providing some lessons-learned related to developing ethics support tools and some reflections on issues of quality and normativity of ethics support tools.
保密性是临床伦理支持(CES)的核心前提条件之一。CES案例若引发CES工作人员在CES期间所讨论内容的保密性(违规)方面的道德问题,可能会带来道德挑战。目前,对于CES工作人员如何能够或应该应对与CES内部(不)违反保密性相关的这些道德挑战,似乎尚无明确的政策或指导方针。道德案例审议是一种特定类型的CES。
基于对道德案例审议(MCD)促进者在这方面的伦理支持需求的经验和研究,我们共同为MCD促进者开发了一种伦理支持工具:保密指南针。本文描述了迭代开发过程,包括我们的理论观点以及对一般CES工具特征的思考。
描述了包含四个要素的伦理支持工具的内容和目标。A部分是关于提供MCD中保密性概念的信息,B部分是带有反思性问题的道德指南针,C部分侧重于谨慎处理与保密性相关的道德挑战的行动方案。D部分包含处理未来案例中保密性问题的一般经验教训、最佳实践和提示。
本文最后提供了一些与开发伦理支持工具相关的经验教训,以及对伦理支持工具的质量和规范性问题的一些思考。