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Increasing Healthcare System Empathy for Patients with Advanced Liver Disease: My Top 10 Lessons in Palliative Hepatology.

作者信息

Ufere Nneka N

机构信息

Liver Center, Gastrointestinal Unit, Department of Medicine, Massachusetts General Hospital, 55 Fruit Street, Boston, MA, 02114, USA.

出版信息

Dig Dis Sci. 2024 Jun;69(6):1929-1933. doi: 10.1007/s10620-024-08406-9. Epub 2024 May 4.

DOI:10.1007/s10620-024-08406-9
PMID:38704486
Abstract
摘要

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本文引用的文献

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Palliative clinical trials in advanced chronic liver disease: Challenges and opportunities.晚期慢性肝病的姑息性临床试验：挑战与机遇
J Hepatol. 2023 Nov;79(5):1236-1253. doi: 10.1016/j.jhep.2023.06.018. Epub 2023 Jul 5.
2
Targets and study design for symptom-focused trials aimed at patients with cirrhosis: An expert consensus.针对肝硬化患者的以症状为重点的试验的目标和研究设计：专家共识。
Hepatol Commun. 2023 Jun 2;7(6). doi: 10.1097/HC9.0000000000000135. eCollection 2023 Jun 1.
3
Promoting Prognostic Understanding and Health Equity for Patients With Advanced Liver Disease: Using "Best Case/Worst Case".
促进晚期肝病患者的预后理解和健康公平：运用“最佳情况/最差情况”
Gastroenterology. 2023 Feb;164(2):171-176. doi: 10.1053/j.gastro.2022.12.005.
4
Understanding Prognosis: Discrepancy in Prognosis Estimates Between Patients With Cirrhosis and their Hepatologists.了解预后：肝硬化患者及其肝病专家对预后估计的差异。
Clin Gastroenterol Hepatol. 2023 Apr;21(4):1005-1012.e4. doi: 10.1016/j.cgh.2022.04.042. Epub 2022 May 26.
5
Alcohol-associated Liver Disease Is Now the Most Common Indication for Liver Transplant Waitlisting Among Young American Adults.酒精相关性肝病现已成为美国年轻成年人进行肝移植等待名单的最常见指征。
Transplantation. 2022 Oct 1;106(10):2000-2005. doi: 10.1097/TP.0000000000004202. Epub 2022 Sep 29.
6
The stigma of alcohol-related liver disease and its impact on healthcare.酒精相关性肝病的污名及其对医疗保健的影响。
J Hepatol. 2022 Aug;77(2):516-524. doi: 10.1016/j.jhep.2022.04.026. Epub 2022 May 5.
7
AASLD Practice Guidance: Palliative care and symptom-based management in decompensated cirrhosis.美国肝病研究学会实践指南：失代偿期肝硬化的姑息治疗与基于症状的管理
Hepatology. 2022 Sep;76(3):819-853. doi: 10.1002/hep.32378. Epub 2022 Apr 22.
8
The 5Ms of Geriatrics in Gastroenterology: The Path to Creating Age-Friendly Care for Older Adults With Inflammatory Bowel Diseases and Cirrhosis.老年病学在胃肠病学中的 5Ms：为患有炎症性肠病和肝硬化的老年患者创建友好型关怀的途径。
Clin Transl Gastroenterol. 2022 Jan 12;13(1):e00445. doi: 10.14309/ctg.0000000000000445.
9
Symptom Frequency and Distress Underestimated in Decompensated Cirrhosis.失代偿期肝硬化患者的症状频率和痛苦程度被低估。
Dig Dis Sci. 2022 Aug;67(8):4234-4242. doi: 10.1007/s10620-021-07216-7. Epub 2021 Aug 27.
10
Cost-Related Nonadherence to Medications Among US Adults With Chronic Liver Diseases.美国慢性肝病患者药物费用相关不依从性。
Mayo Clin Proc. 2021 Oct;96(10):2639-2650. doi: 10.1016/j.mayocp.2021.02.026. Epub 2021 Jun 11.