Global Parents for Eczema Research, Santa Barbara, California, USA.
University of Illinois at Chicago, Chicago, Illinois, USA.
Australas J Dermatol. 2024 Sep;65(6):514-519. doi: 10.1111/ajd.14299. Epub 2024 May 8.
Atopic dermatitis patients and caregivers experience a high physical, mental and financial burden in Australia. We outline how the current care model impacts disease management and patients' quality of life via a survey of 265 Australian patients and caregivers to capture the experience of managing atopic dermatitis (AD) in Australia. Patients report an unsatisfactory quality of life and a high burden of disease with poor long-term control and low treatment satisfaction. They also reported changing spending and saving patterns to fund medical care. Patient experience improves with more specialised care that incorporates shared decision-making and patient/caregiver training beyond the clinic visit. These results highlight the need for improved general practitioner (GP) education, expedited access to medical specialists, greater patient involvement in treatment choices and more financial assistance to improve the experience of Australian patients and caregivers.
在澳大利亚，特应性皮炎患者及其照护者承受着身体、心理和经济的多重负担。我们通过对 265 名澳大利亚患者及其照护者进行调查，概述了当前的护理模式如何影响疾病管理和患者的生活质量，以了解澳大利亚特应性皮炎（AD）的管理情况。患者报告生活质量差，疾病负担重，长期控制不佳，治疗满意度低。他们还报告说，为了支付医疗费用，改变了支出和储蓄模式。通过包含共享决策和超出就诊范围的患者/照护者培训的更专业的护理，患者体验得到改善。这些结果突显了需要改善全科医生（GP）教育，加快获得医学专家的机会，让患者更多地参与治疗选择，并提供更多的经济援助，以改善澳大利亚患者及其照护者的体验。
