Cerrahpaşa Faculty of Medicine, Department of Otorhinolaryngology, İstanbul University-Cerrahpaşa, Turkey.
Faculty of Health Sciences, Department of Audiology, İstanbul University-Cerrahpaşa, Turkey.
Am J Audiol. 2024 Sep 3;33(3):705-717. doi: 10.1044/2024_AJA-23-00173. Epub 2024 May 15.
This study aimed to investigate family resilience-defined as the capacity of a family to harness its collective strengths and resources to recover from and adapt to significant adversities or crises effectively-in primary caregivers of children who are deaf and hard of hearing (cDHH) and its association with quality of life, life satisfaction, perceived social support, and loneliness.
The study involved 108 primary caregivers of cDHH and 139 primary caregivers of children with normal hearing. Participants underwent psychometric evaluations including the Family Resilience Scale, World Health Organization Quality of Life Assessment-Brief Form, Satisfaction with Life Scale, UCLA Loneliness Scale, and Multidimensional Scale of Perceived Social Support.
Significant differences were found in almost every scale and its subdimension between the two groups ( < .05). Correlation analysis revealed significant correlations between all scale total scores for both groups ( < .05, .153 < | | < .737). Quality of life was found to be a significant predictor of family resilience, (1, 139) = 41.824, .279, = 0.495, = 6.467, < .001.
Our study highlights the significant impact of having cDHH on caregivers' family resilience, quality of life, life satisfaction, feelings of loneliness, and perceived social support. The results underscore the importance of enhancing caregivers' quality of life as a potential strategy to improve their family resilience. Further research is needed to understand the complex interplay of factors influencing these outcomes.
本研究旨在探讨家庭韧性——即家庭利用集体优势和资源从重大逆境或危机中有效恢复并适应的能力——在聋儿和重听儿童的主要照顾者中的作用,以及其与生活质量、生活满意度、感知社会支持和孤独感的关系。
研究纳入了 108 名聋儿的主要照顾者和 139 名正常听力儿童的主要照顾者。参与者接受了心理测量评估,包括家庭韧性量表、世界卫生组织生活质量评估-简明量表、生活满意度量表、加州大学洛杉矶分校孤独感量表和多维感知社会支持量表。
两组在几乎每个量表及其子维度上都存在显著差异(<.05)。相关分析显示,两组所有量表总分之间均存在显著相关性(<.05,.153 < | | <.737)。生活质量被发现是家庭韧性的一个显著预测因素,(1, 139) = 41.824,.279, = 0.495, = 6.467, <.001。
我们的研究强调了聋儿对照顾者家庭韧性、生活质量、生活满意度、孤独感和感知社会支持的重大影响。研究结果强调了提高照顾者生活质量作为改善其家庭韧性的潜在策略的重要性。需要进一步研究以了解影响这些结果的复杂因素之间的相互作用。