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一条针对被忽视人群的康复之路及其独特挑战:将康复纳入物质使用障碍患者的姑息治疗中。

A path to recovery for overlooked populations and their unique challenges: integrating rehabilitation in palliative care for patients with substance use disorders.

作者信息

Aljassem Annas, Spickler Michael, Kapur Nandita

机构信息

Department of Physical Medicine and Rehabilitation, Oakland University William Beaumont School of Medicine, Royal Oak, MI, United States.

Department of Physical Medicine and Rehabilitation, Corwell Health William Beaumont University Hospital, Royal Oak, MI, United States.

出版信息

Front Rehabil Sci. 2024 May 2;5:1373857. doi: 10.3389/fresc.2024.1373857. eCollection 2024.

DOI:10.3389/fresc.2024.1373857
PMID:38756191
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11096464/
Abstract

Palliative care is a growing medical specialty focusing on providing compassionate and holistic management for those facing life-threatening diseases. These patients frequently present with physical, functional, emotional, and psychosocial problems that require comprehensive interdisciplinary management. However, there is a substantial opportunity to improve care for patients in palliative care who also have a substance use disorder (SUD). These opportunities include direct provision of SUD treatments by specialist palliative care providers and the integration of physical medicine and rehabilitation services. The purpose of this article is to examine the misunderstood and underutilized interaction between palliative care and SUDs, as well as describing the unique opportunities provided by physical medicine and rehabilitation providers to achieve a patient's palliative care goals and optimize overall quality of life. Substance Use Disorder is a chronic, often relapsing, illness that is relevant to palliative care practice due to the potential for significant morbidity and mortality through organ failure, chronic infections, and overdose syndromes. In traditional palliative care practice, it has been observed that past or current SUD diagnoses are often left untreated, resulting in increased distress, and exacerbating an already complex medical situation. Furthermore, many of these patients also experience physical, functional, or psychosocial changes that, when left untreated, will worsen distress and quality of life. To provide more comprehensive and successful palliative care for patients with SUD, the authors recommend an increased emphasis on specialist palliative care training in SUD management, proactive integration of rehabilitation services into the palliative care team, and consistent advocacy for these steps in various arenas. Combined, these actions can improve the care team's ability to provide a holistic, patient-centered approach that can have substantial positive outcomes for patients, health systems, and society.

摘要

姑息治疗是一个不断发展的医学专业,专注于为面临危及生命疾病的患者提供富有同情心的整体管理。这些患者经常出现身体、功能、情感和心理社会问题,需要综合的跨学科管理。然而,对于同时患有物质使用障碍(SUD)的姑息治疗患者,改善护理仍有很大的机会。这些机会包括由专科姑息治疗提供者直接提供SUD治疗,以及整合物理医学和康复服务。本文的目的是探讨姑息治疗与SUD之间被误解和未充分利用的相互作用,并描述物理医学和康复提供者为实现患者的姑息治疗目标和优化整体生活质量所提供的独特机会。物质使用障碍是一种慢性、通常会复发的疾病,由于器官衰竭、慢性感染和过量综合征导致的重大发病率和死亡率,与姑息治疗实践相关。在传统的姑息治疗实践中,人们观察到过去或当前的SUD诊断往往得不到治疗,导致痛苦加剧,并使本已复杂的医疗状况恶化。此外,许多这些患者还经历身体、功能或心理社会变化,如果不加以治疗,将使痛苦和生活质量恶化。为了为患有SUD的患者提供更全面、更成功的姑息治疗,作者建议加强对SUD管理方面的专科姑息治疗培训,将康复服务积极纳入姑息治疗团队,并在各个领域持续倡导这些措施。综合起来,这些行动可以提高护理团队提供以患者为中心的整体方法的能力,这对患者、卫生系统和社会都能产生重大的积极成果。

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本文引用的文献

1
Substance use disorders in hospice palliative care: A narrative review of challenges and a case for physician intervention.临终关怀与姑息治疗中的物质使用障碍:对挑战的叙述性综述及医生干预的理由
Palliat Support Care. 2024 Feb 29:1-9. doi: 10.1017/S1478951523001402.
2
Building Bridges in Palliative Rehabilitation: An Evidence-Based Toolkit to Promote Collaboration.构建姑息康复中的桥梁:促进合作的循证工具包。
Am J Hosp Palliat Care. 2024 Jun;41(6):601-609. doi: 10.1177/10499091231184621. Epub 2023 Jul 18.
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Occupational Therapy Practice in Palliative and End-of-Life Care in Québec.魁北克省姑息治疗和终末期关怀中的职业治疗实践。
Can J Occup Ther. 2022 Jun;89(2):201-211. doi: 10.1177/00084174221084466. Epub 2022 Mar 4.
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Substance Use Disorders Are Deadly.物质使用障碍是致命的。
Am J Psychiatry. 2022 Jan;179(1):11-13. doi: 10.1176/appi.ajp.2021.21101069.
5
Physical therapists should play a greater role in managing patients with opioid use and opioid misuse.物理治疗师应该在管理阿片类药物使用和阿片类药物滥用患者方面发挥更大的作用。
Subst Abus. 2021;42(3):255-260. doi: 10.1080/08897077.2021.1971818. Epub 2021 Sep 15.
6
A Comprehensive Approach to Understanding Substance Use Disorder and Recovery: Former Patients' Experiences and Reflections on the Recovery Process Four Years After Discharge from SUD Treatment.一种理解物质使用障碍与康复的综合方法:曾接受物质使用障碍治疗的患者出院四年后对康复过程的经历与反思
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Meeting at the crossroads of pain and addiction: An ethical analysis of pain management with palliative care for individuals with substance use disorders.在疼痛和成瘾的十字路口相遇:对患有物质使用障碍者进行姑息治疗的疼痛管理的伦理分析。
J Opioid Manag. 2021 May-Jun;17(3):207-214. doi: 10.5055/jom.2021.0631.
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Adapting Palliative Care Skills to Provide Substance Use Disorder Treatment to Patients With Serious Illness.调整姑息治疗技能,为重症患者提供物质使用障碍治疗。
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Primary Addiction Medicine Skills for Hospice and Palliative Medicine Physicians: A Modified Delphi Study.初级成瘾医学技能在姑息医学中的应用:一项改良 Delphi 研究。
J Pain Symptom Manage. 2021 Oct;62(4):720-729. doi: 10.1016/j.jpainsymman.2021.02.035. Epub 2021 Mar 5.
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Alcohol Res. 2021 Jan 21;41(1):01. doi: 10.35946/arcr.v41.1.01. eCollection 2021.