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在英国,患有长新冠的人目前得到了怎样的护理?一项定性访谈研究。

What is current care for people with Long COVID in England? A qualitative interview study.

机构信息

Institute of Health Informatics, University College London, London, UK

Institute of Health Informatics, University College London, London, UK.

出版信息

BMJ Open. 2024 May 16;14(5):e080967. doi: 10.1136/bmjopen-2023-080967.


DOI:10.1136/bmjopen-2023-080967
PMID:38760030
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11107429/
Abstract

OBJECTIVE: To investigate current care for people with Long COVID in England. DESIGN: In-depth, semistructured interviews with people living with Long COVID and Long COVID healthcare professionals; data analysed using thematic analysis. SETTING: National Health Service England post-COVID-19 services in six clinics from November 2022 to July 2023. PARTICIPANTS: 15 healthcare professionals and 21 people living with Long COVID currently attending or discharged (18 female; 3 male). RESULTS: Health professionals and people with lived experience highlighted the multifaceted nature of Long COVID, including its varied symptoms, its impact on people's lives and the complexity involved in managing this condition. These impacts encompass physical, social, mental and environmental dimensions. People with Long COVID reported barriers in accessing primary care, as well as negative general practitioner consultations where they felt unheard or invalidated, though some positive interactions were also noted. Peer support or support systems proved highly valuable and beneficial for individuals, aiding their recovery and well-being. Post-COVID-19 services were viewed as spaces where overlooked voices found validation, offering more than medical expertise. Despite initial challenges, healthcare providers' increasing expertise in diagnosing and treating Long COVID has helped refine care approaches for this condition. CONCLUSION: Long COVID care in England is not uniform across all locations. Effective communication, specialised expertise and comprehensive support systems are crucial. A patient-centred approach considering the unique complexities of Long COVID, including physical, mental health, social and environmental aspects is needed. Sustained access to post-COVID-19 services is imperative, with success dependent on offering continuous rehabilitation beyond rapid recovery, acknowledging the condition's enduring impacts and complexities.

摘要

目的:调查英格兰目前对长新冠患者的护理情况。

设计:对长新冠患者和长新冠医疗保健专业人员进行深入的半结构化访谈;使用主题分析对数据进行分析。

地点:2022 年 11 月至 2023 年 7 月,在英格兰国民保健署新冠疫情后服务的六个诊所。

参与者:15 名医疗保健专业人员和 21 名目前正在接受或已出院的长新冠患者(18 名女性;3 名男性)。

结果:卫生专业人员和有亲身经历的人强调了长新冠的多方面性质,包括其不同的症状、对人们生活的影响以及管理这种疾病的复杂性。这些影响包括身体、社会、心理和环境方面。长新冠患者报告说,他们在获得初级保健方面存在障碍,而且在全科医生的咨询中,他们感到自己没有被倾听或被忽视,但也注意到了一些积极的互动。同伴支持或支持系统对个人来说非常有价值和有益,有助于他们的康复和幸福。后新冠疫情服务被视为被忽视的声音得到认可的空间,提供的不仅仅是医学专业知识。尽管最初存在挑战,但医疗保健提供者在诊断和治疗长新冠方面的专业知识不断增加,有助于完善这种疾病的护理方法。

结论:英格兰的长新冠护理在所有地点都不一致。有效的沟通、专门的专业知识和全面的支持系统至关重要。需要采取以患者为中心的方法,考虑长新冠的独特复杂性,包括身体、心理健康、社会和环境方面。持续获得后新冠疫情服务至关重要,成功取决于提供持续的康复,而不仅仅是快速康复,承认该疾病的持久影响和复杂性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/baaa/11107429/5cc6b45920dd/bmjopen-2023-080967f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/baaa/11107429/5cc6b45920dd/bmjopen-2023-080967f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/baaa/11107429/5cc6b45920dd/bmjopen-2023-080967f01.jpg

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引用本文的文献

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Health Expect. 2025-6

[2]
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[3]
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[4]
Effectiveness of a personalised self-management intervention for people living with long covid (Listen trial): pragmatic, multicentre, parallel group, randomised controlled trial.

BMJ Med. 2025-1-31

[5]
Post COVID-19 and Long COVID Symptoms in Otorhinolaryngology-A Narrative Review.

J Clin Med. 2025-1-14

[6]
Psychosocial Aspects of the Lived Experience of Long COVID: A Systematic Review and Thematic Synthesis of Qualitative Studies.

Health Expect. 2024-10

[7]
Long COVID science, research and policy.

Nat Med. 2024-8

本文引用的文献

[1]
"It was almost like it's set up for people to fail" A qualitative analysis of experiences and unmet supportive needs of people with Long COVID.

BMC Public Health. 2023-10-31

[2]
Impact of fatigue as the primary determinant of functional limitations among patients with post-COVID-19 syndrome: a cross-sectional observational study.

BMJ Open. 2023-6-7

[3]
Patients' negative experiences with health care settings brought to light by formal complaints: A qualitative metasynthesis.

J Clin Nurs. 2023-9

[4]
How do long COVID patients perceive their current life situation and occupational perspective? Results of a qualitative interview study in Germany.

Front Public Health. 2023

[5]
Physical and cognitive impairments in people suffering from long COVID: protocol for a longitudinal population-based cohort study.

BMJ Open. 2023-3-15

[6]
A new approach to digital health? Virtual COVID-19 care: A scoping review.

Digit Health. 2023-2-12

[7]
Racial/Ethnic Disparities in Post-acute Sequelae of SARS-CoV-2 Infection in New York: an EHR-Based Cohort Study from the RECOVER Program.

J Gen Intern Med. 2023-4

[8]
STIMULATE-ICP: A pragmatic, multi-centre, cluster randomised trial of an integrated care pathway with a nested, Phase III, open label, adaptive platform randomised drug trial in individuals with Long COVID: A structured protocol.

PLoS One. 2023

[9]
Long COVID Linked With Unemployment in New Analysis.

JAMA. 2023-3-7

[10]
As a doctor with long covid, I feel abandoned by the NHS.

BMJ. 2023-2-10

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