Stenman Tove, Rönngren Ylva, Näppä Ulla, Melin-Johansson Christina
Department of Health Sciences Nursing Science, Mid Sweden University, Östersund, S-831 25, Sweden.
BMC Nurs. 2024 May 18;23(1):336. doi: 10.1186/s12912-024-01988-9.
Patients with palliative care needs live with the reality of limited time due to illness or age, eliciting emotional and existential responses. A failure to address their existential needs can lead to significant suffering. A person-centred approach is paramount to effectively address these needs, emphasising holistic care and effective communication. Although existing communication models focus on predefined frameworks, a need exists to explore more spontaneous and confidential conversations between patients and nurses. Confidential conversations have the potential to build therapeutic relationships and provide vital emotional support, highlighting the need for further research and integration into palliative care practice. This study aims to more deeply understand the meaning of confidential conversations for patients with palliative care needs.
In-depth interviews were conducted with 10 patients in the context of specialised palliative care. A hermeneutic analysis was used to gain a deeper understanding of the meanings of the conversations.
The patients had varying experiences and wishes concerning confidential conversations. They strived for self-determination in finding confidants, seeking trust and comfort in their interactions with nurses. Trust was crucial for creating a safe space where patients could express themselves authentically. In shared belonging, confidential conversations with a nurse provided validation and relief from life's challenges. Experiences of feeling unheard or rejected by a nurse could intensify loneliness, prompting individuals to withdraw and remain silent. Regardless of the motives behind their choices, it was crucial that patients felt respect and validation in their decisions. Their autonomy could thus be recognised, and they felt empowered to make decisions based on their unique preferences.
Patients value trust and understanding, particularly in confidential conversations with nurses, which offer solace, validation and empowerment. However, indifference can increase patients' suffering, fostering self-doubt and reluctance to engage further. To address this, health care can prioritise empathic communication skills, offer ongoing support to nurses, and promote continuity in care through investment in training and resources. Additionally, adopting a person-centred approach in confidential conversations is crucial, considering patients' varying preferences.
患有姑息治疗需求的患者因疾病或年龄而面临生命有限的现实,引发情感和生存反应。未能满足他们的生存需求可能导致巨大痛苦。以患者为中心的方法对于有效满足这些需求至关重要,强调整体护理和有效沟通。尽管现有的沟通模式侧重于预定义框架,但仍有必要探索患者与护士之间更自然和私密的对话。私密对话有可能建立治疗关系并提供至关重要的情感支持,凸显了进一步研究并将其纳入姑息治疗实践的必要性。本研究旨在更深入地理解私密对话对有姑息治疗需求患者的意义。
在专科姑息治疗背景下对10名患者进行了深入访谈。采用诠释分析以更深入地理解对话的意义。
患者对私密对话有不同的经历和愿望。他们在寻找知己方面追求自主,在与护士的互动中寻求信任和安慰。信任对于创造一个患者能够真实表达自己的安全空间至关重要。在共同归属中,与护士的私密对话提供了认可并缓解了生活挑战。感到未被护士倾听或拒绝的经历可能会加剧孤独感,促使个体退缩并保持沉默。无论他们选择背后的动机如何,患者在其决定中感到尊重和认可是至关重要的。这样他们的自主权就能得到认可,并且他们感到有能力根据自己的独特偏好做出决定。
患者重视信任和理解,尤其是在与护士的私密对话中,这些对话提供慰藉、认可和力量。然而,冷漠会增加患者的痛苦,滋生自我怀疑并导致不愿进一步交流。为解决这一问题,医疗保健可优先考虑共情沟通技巧,为护士提供持续支持,并通过投资培训和资源来促进护理的连续性。此外,在私密对话中采用以患者为中心的方法至关重要,要考虑到患者的不同偏好。