Department of Clinical Science and Education, Södersjukhuset, Karolinska Institutet, Stockholm, Sweden; Department of Surgery, Södersjukhuset, Stockholm, Sweden.
Department of Molecular Medicine and Surgery, Karolinska Institutet, Stockholm, Sweden; Department of Vascular Surgery, Karolinska University Hospital, Stockholm, Sweden.
J Surg Res. 2024 Jul;299:205-212. doi: 10.1016/j.jss.2024.04.031. Epub 2024 May 20.
Critical limb-threatening ischemia (CLTI) is associated with a high risk of amputation, yet patients undergoing amputation due to CLTI have little knowledge of the amputation process and the rehabilitation that awaits. The aim of the present study was to develop and validate information material for patients undergoing amputation.
Nine participants were included in the study. Two focus group interviews were performed with seven patients who had undergone lower extremity amputation due to CLTI within the past 2 y. Additionally, two individual interviews were carried out. A semistructured interview guide was used, and the interviews were transcribed verbatim and analysed using qualitative content analysis with a deductive approach.
Three themes were identified as essential for the design of the written information: Perspectives on design and formatting, Providing information to enhance participation in care, and Accessibility to information and support. The prototyped information leaflet was perceived as acceptable, useable, relevant, and comprehensible by the participants.
For patients to actively engage in their care, it is vital that their information needs are met and that they are provided with psychosocial support when needed. Written and oral information should be provided by a trusted healthcare professional.
严重肢体缺血（CLI）有很高的截肢风险，但因 CLI 而截肢的患者对截肢过程和康复知之甚少。本研究旨在开发和验证接受截肢手术患者的信息材料。
本研究纳入了 9 名参与者。对 7 名在过去 2 年内因 CLI 而行下肢截肢的患者进行了 2 次焦点小组访谈。此外，还进行了 2 次单独访谈。使用半结构化访谈指南，对访谈进行逐字转录，并采用演绎法的定性内容分析进行分析。
确定了设计书面信息的三个主题：设计和格式的观点、提供信息以增强参与护理的能力，以及信息和支持的可及性。原型信息传单被参与者认为是可接受、可用、相关和易懂的。
为了让患者积极参与护理，满足他们的信息需求并在需要时提供心理社会支持至关重要。书面和口头信息应由值得信赖的医疗保健专业人员提供。
